My partner does not think I should be on here until I have actually been diagnosed with endometriosis, which I understand they explained they don’t want me to read anything that might worry me more but I explained it’s not like having a broken arm and eveyone can see it, you can’t talk about Endo without having to talk about periods and sometimes it can feel like people don’t understand how much pain your actually in, and I’m worried me moaning about how much pain I’m in will just get boring and my partner will just get sick of it.
Sorry about the long post but can anyone relate? Thanks xx
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Xroisinellenx
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I joined this site last year and was only diagnosed with endo on Monday, it helps a lot to talk to people who are experiencing the same as you. A lot of ladies on here haven't yet been diagnosed but that doesn't mean it can't be useful, it helped me a lot x
I'm yet to find a diagnosis for my issues and I've even had a lap. I do believe it is endometriosis but I also understand I need to rule everything else out as well. This page has been invaluable at times when I thought I was seriously unwell, it's helped me to understand more and to realise I'm not alone. Everyone's journey is very different though and i wish you all the best in getting a diagnosis x
I also joined here before getting a diagnosis. It became very clear to me very quickly that lots of consultants and Doctors I saw wasn’t sure what was wrong with me & then this word endometriosis was loosely batted around, but no one seemed to know too much about it. This site has been so so helpful in various different stages as people can suggest new things or say what’s worked for them.
One consultant later on who knew a fair bit said to me to look online and find support “there are some great forums” were his words. He was right! X
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