Endometriosis and isolated: Hello. I am new... - Endometriosis UK

Endometriosis UK

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Endometriosis and isolated


Hello. I am new to this, but need to talk. I have been struggling with this since I was 14 years old (went through it alone as I couldn’t speak to anyone) and am now 32. I had surgery two years ago but it is back. It has been suggested I get a hysterectomy but I don’t want to do that. I feel alone and need to talk to others who understand.

2 Replies

Hey hun sorry to hear that you been going through it. But just know your not alone my darling I agree with u that you shouldn’t get a hysterectomy if your surgeon is not listening you have the right to leave and look for an endometriosis specialist. If you ever need to talk just Send me a personal message. X.

Hi Taraire,

Welcome to to the forum and I am sorry you are feeling alone with all this.

If you need someone to talk to, Endometriosis UK do have a network of support that available to women with endometriosis. Our free helpline 0808 808 2227 is run by volunteers who have experience of endometriosis. The helpline is open most days – the times it is open can be viewed here:


You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. You can take a look here: endometriosis-uk.org/find-a... to find out if there is one in your local area.

I hope this helps. Take care and please keep us updated on how you are getting on.


Volunteer Moderator

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