Symptoms

[waltonk]

Hi all,

What symptoms does everyone have?

I would like to compare to mine.

Thank you

Kelly

[Lovisa]

Hello

I get - bloating, lower left tugging/sharp shooting pain, cystitis each time I'm due on with blood in urine, sharp shooting pain up the bum, extremely painful ovulation, cramps which go from my abdominal to my kidneys, chronic constipation, blood in stools with some periods, lower right sharp pain, stabbing or thumping pain near my bellybutton, pain in left breast and right shoulder when due/on, upper right dull to sharp aches (under last rib area), black periods which looks like gravel, general shooting pain up the lady parts and throughout the pelvis.

[waltonk in reply to Lovisa]

Thank you had you been diagnosed? X

[Lovisa in reply to waltonk]

I'm diagnosed stage 4 with poD, bowels and ureter endo.

[waltonk in reply to Lovisa]

Have you had surgery?

[Lovisa in reply to waltonk]

I'm going in for my 4th endo lap next month.

[waltonk in reply to Lovisa]

Good luck c

[Lovisa in reply to waltonk]

Thanks x

[RR21]

Hello I have : heavy weighted ache in pelvis like a stone for a womb, back /leg pain mainly right side-leg pain deep in bone, bladder urgency and fullness, overall burning in pelvis, bleeding old blood for upto 3 weeks, cramps that encompass my whole lower body, cramps and spotting after sex, nausea, heartburn, stitch in rib feeling, headaches, tugging twisting throught pelvis, sharp pain during bowel movements like my insides are yanked on, bloating, swollen uterus feeling hard to lie on stomach. I think that is it... frankly since things realky escalated for me almost a year ago I have felt like i do not know this body. I never got sick wasnt soneone who experienced aches and pains and considered myself lucky to have short and light periods, although painful. I experienced a 3 week long burning swollen twisting pain with bladder issues and everything has come and gone since then. I think back on the last 2 or 3 years and my periods kept getting worse. Have not been diagnosed, I believe I have endo, IC, and maybe adeno. Hope this helps

[waltonk in reply to RR21]

Thank you I hope you get it sorted x

[Tilozherely]

I have a rare type of Endo that has grown in my umbilical, 2 surgeries later in less than 7mths and it has returned again. Each excision makes it grow rapidly again. I get hormonal migraines at period and ovulation time, dead weighted heavy period pain, a day of excessively heavy bleeding, stabbing, and sharp pains, plus intense aches in my uterus, anus, and ovaries just before my period, and again at ovulation. I also get a horrid pain up between my perineum and my spine when I sit down during my period. It feels like a sword being shoved up through the center of my body beginning at that point between my vagina and anus. Yes, I am diagnosed, but show no large endo in my reproductive organs. Instead, endo has grown in my umbilical as I mentioned before and now suspected under my arms on my lymph nodes. I am due for scans and MRI mid-July. Not sure this helps as my symptoms are not typical - but I can confirm a diagnosis that I do have endo. thank you and good luck chickadee. xx

[Porter85]

I get.... Bloating, tight feeling in the stomach, generally the most severe when I start my period but I get it throughout the month as well. Nausea comes and goes through the day, depression occurs during the period and around day 21 of my cycle I get very low and feel exhausted. Hope that helps.

[Char411]

I get left sided dull ache in a very specific area in my pelvis, sharp stabbing pains, a burning sensation that feels like my uterus is trying to burn its way out through my bikini line, rectal and vaginal sharp shooting stabbing pain, pain opening bowels on my period, constiption and diarrhea, left leg pain, left hip pain, chronic backache, nausea, prolonged periods, periods starting with brown blood, menstrual bleeding from my rectum on my periods, fatigue, headaches on my periods and joint pain, I also get a pulling/ripping/tugging sensation in my pelvis when I move a certain way or sneeze in a certain position. It’s quite depressing when you see how long the list is written down like that

Big hugs xx

[RR21 in reply to Char411]

Thats a great way to describe the burning feeling. !

[weekari]

I have severe endo but I don't know yet where it is.

I have awful back pain, its my lower back to the right of my coxyx. I also get hip pain which feels in my joints. I get staving pain in them and a horrible grinding pain. It can be hard to move sometimes.

I have disabling fatigue. It varies day to day but I'm always exhausted. I seem to be worse the week before my period.

I can get terrible bloating from my bellybutton down. It can be quite unbelievable how much I can swell up.

I get lots of abdominal pain. The most common is a stabbing pain in my rectum which can be difficult to tolerate. l also get lots of pains all around my abdomen. Shooting pains that just last a moment and weird moving pains. I get pain during ovulation, like I can feel something is stuck and trying to move. It's a horrible dragging feeling.

I have no period related problems. They are very regular, not that heavy and not that painful.

I'm not on any medication or contraception. And I've not had any treatment for the endo, I've only just been diagnosed.

[Linz4686]

Tired, pain when going to the toilet, pain after or during sex, heavy bleeding, bleeding when not suppose to be

[Penelope29]

I just posted as trying to clarify if my symptoms are consistent with endo. I have chronic back pain with radiating pain through my legs and hips ( especially right side), right side flank pain ( at times it feels like someone is plucking a tight string, or a burning/gnawing sensation and sort of feeling like something is pressing against that area), left should pain, pelvic pain, very painful periods and increase in pains during ovulation