Hi everyone, I was diagnosed ...

[gemmab21093]

Hi everyone,

I was diagnosed with endometriosis 5 years ago. For me it all started when I went for a wee one morning and it began to sting. This went on for about a week so I went to the doctors, they thought I had a water infection and I tried every tablet linked to this but still no improvement.

I was eventually referred to gynaecology at the hospital where they tried different tests to work out what it was. At this point I was in a long term relationship for 4 years and we just could have sex it was too painful. I had scans which obviously didn’t show up the endometriosis but was offered counselling and told everything was in my head. As a 19 year old I was distraught and didn’t know what to do!

After being referred to a different hospital because the previous one couldn’t do anything more for me I finally had the laporoscopy and it was confirmed that I had an extreme case of endo. I felt like I was fobbed a lot and not listened to because it’s not common in young people.

5 years later I have had 2 surgeries to remove the endometriosis, one of these was a year ago last month. I have been controlling endo with a pill and a mini pill to only have 4 periods a year, this is not working anymore my periods are constantly starting even when taking the pills religiously every day. I have now been referred back to gynaecology again any suggestions to what I could try next?

Feel like I’m stuck in a rut of feeling fed up and tired constantly. I’ve had several relationships which have not lasted because of endometriosis mainly related around sex which I think has knocked my confidence a lot.

It would be great to meet up with people who are suffering from endo to relate to what you are going through, I don’t know anyone around me who suffers with it so I think it’s hard for people to be understand what it’s like living with it for 5 years.