Got a cancellation appointment to see end... - Endometriosis UK

Endometriosis UK

70,608 members β€’ 52,111 posts

Got a cancellation appointment to see endo specialist this Wednesday 😁

β€’16 Replies

Hi ladies.

I was offered a cancellation appointment for this Wednesday to see the endometriosis specialist; I will be given full details Monday morning before work 😁

I’m not sure what to expect ; I’ve had two laps within around 8 months ; endo removed from POD and some left on rectum 🀒which fertility specialist says needs an endometriosis specialist that works alongside a bowel surgeon.

Anyone who has been to an endo centre and has advice to offer would be much appreciated. xoxo

16 Replies
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foursimplewords profile image
foursimplewords

have you looked at the consultation questionnaire on the endo uk website x

in reply to foursimplewords

No I haven’t I think I might have a look. Thank you xoxo

RicEndoUK profile image
RicEndoUK in reply to

Hi jess1981,

You can find the questionnaire here:

endometriosis-uk.org/sites/...

Hope this helps and good luck!

RicEndoUk

Volunteer Moderator

in reply to RicEndoUK

Thank you that is very helpful xoxo

AllWeNeedIsluv profile image
AllWeNeedIsluv

Brilliant news lovely. Hope all goes well πŸ’–πŸ˜˜

in reply to AllWeNeedIsluv

Thank you. Really happy to be moving forward 😁 xoxo

AllWeNeedIsluv profile image
AllWeNeedIsluv in reply to

Im not surprised it's good that things have got moving so quick after they didn't hear of you. Good luck on Wednesday hun πŸ˜˜πŸ’–

in reply to AllWeNeedIsluv

Congratulations on the scan; fabulous news. Really pleased it’s going well you deserve it after everything πŸ’•πŸ’•πŸ’• xoxo

AllWeNeedIsluv profile image
AllWeNeedIsluv in reply to

Thanks hun 😍

Hopefully once you've had this endo sorted out looks like it's going to be sooner rather than later, you can get back on the road to having a 🌈 πŸ’–πŸ˜˜

in reply to AllWeNeedIsluv

Thank you. Definitely feels positive 😘xoxo

luthien profile image
luthien

I've just had my appointment with my specialist regarding having my endo removed from my colon - had a previous lap to remove all other endo 4 months ago. Mine was really helpful, he didn't recommend surgery immediately as my symptoms have improved; however he did say he would be 1/3 in favour of doing the surgery to get rid of all endo considering I still have some symptoms, 2/3 against (1/3 being it's more invasive - another surgeon required, and 1/3 because my symptoms have improved). So if I opted for it he would understand. I guess you could ask that sort of thing.

My hubby and I went home and talked, we decided as we're not planning but not preventing; just enjoying a healthy sex life, and whatever happens happens, we'll get as much endo removed as possible so we know were we are. I've emailed my specialist mentioning that with a possibility of having an op in June / July, as it takes time to book both surgeons. I am waiting for his reply.

I know all the above may not be relevant however I'm hoping it helps you think about your appointment xx

in reply to luthien

That is helpful to know how it all works.

We’ve been ttc 6 years 8 months; it took nearly 6 years to find the cause; yep endo was found and treated in June last year and we conceived ( first time ever) but I miscarried and endo returned; I’ve been told by my fertility specialist I’m prone to it recurring πŸ€¦πŸΌβ€β™€οΈ like you most was removed but some left on bowel area.

Your op sounds similar to what mine might be; with bowel endometriosis you need a bowel surgeon present .

ill have to see what’s what when I see him.

Hope you hear an from him 😘 xoxo

Tillyfloss profile image
Tillyfloss

hi. That's brilliant news you should find it so helpful, I felt someone finally understood what I was talking about I nearly cried with relief!! I found it helpful to write a time line of what had happened up to that point which he seemed to find useful and kept to discuss with the other surgeons.

hope you have a really positive appointment and you come out with a plan.

xx

in reply to Tillyfloss

Thank you.

My fertility specialist has been very supportive but I do need an endo specialist to look at this.; it’s their area. 😁

I will be doing that thank you ; I want to be as prepared as possible. Great tip 😘 xoxo

It’s great news that you have an appointment so soon xx

in reply to Lizzielizzielizzie

I know I’m so lucky. Thank you hope the pregnancy is going well xoxo

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