The first time I knew something was wrong... - Endometriosis UK

Endometriosis UK

72,397 members52,914 posts

The first time I knew something was wrong...

Tomato_Stalk profile image
0 Replies

Hi everyone!

I wanted to share with you all the story of my first experience with my endometriosis (un-diagnosed but hopefully rectifying that in the next couple of weeks!).

I was only about 13 years old when the worst period of my life hit me mid week at home while I was helping my mum cook dinner for the family. I remember getting my usual unpleasant left-side-centric (isn't the English language amazing you can just make up words and people know what you mean! Haha) cramps and thinking 'ach you bloody little shites' while I just got on with chopping the veg and setting the table. No pun intended.

Anyway, my cramps just got... worse. And worse. I ended up pacing the kitchen floor and my mum eventually told me to go upstairs and lie down - essentially sleep it off. I crawled into bed, but had to push the covers off because I began sweating so much. Before I knew it I was writhing in pain, this sickening, nauseating pain. If I didn't know better I would have said I was having contractions on top of it all. It came in excruciating waves, and in between the waves I would have a precious few seconds of relief where I would try and recover and calm myself as much as possible. I had hot sweats then I had cold sweats. Eventually I didn't have the energy to cope, and passed out from the pain. I actually lost consciousness! Never in my life had I experience pain so bad that I literally passed out from it.

I've had this experience about 6 - 10 times in my life, thankfully no more and none since I received the Mirena as it halted my periods for about 5 years, to 'save my uterus and keep my fertility'. I have pain during sex, but it's not dreadful, and only occasionally does sex trigger bleeding and cramps.

One question I'd like to ask anyone reading this who also has endo - after horrendous cramps and when they finally subside, do you feel an overwhelming sense of happiness and relief? I get it almost every time, and once I'm pain free I usually feel so ecstatic that it's gone I usually do some baking or hang out with my family. Haha.

Anyway, that's my story.

:)

Written by
Tomato_Stalk profile image
Tomato_Stalk
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Laparoscopy tomorrow - scared it will come back negative

So I’m 19 and have several symptoms with period like pain and cramps with bowel movements, heavy...

Describe the pain during sex

Can anyone describe the pain during sex? Sorry if I'm going to be a bit blunt but I wanted to see...

I have all the symptoms but laparoscopy found nothing

Hello ladies, I am writing you from my he'd where I have been since yesterday when I started having...

Suspected endo, am I in the right place - anything else i should be doing?

Hey all,  Ive been suffering with very painful periods and pain and bleeding during/after sex for...

Should I go for the lap? Help!

Hi all, I've been put forward to go for a lap next year as the doctors suspect I could have endo......