No endo found but adhesions : Hi everyone... - Endometriosis UK

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No endo found but adhesions

Emma19 profile image
4 Replies

Hi everyone

Just recovering in hosp after lap! No endo found but they did find scar tissue/adhesions. Anyone else experienced this? Don’t really know much about it so any advice would be great!

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Emma19 profile image
Emma19
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Starry profile image
Starry

There are apparently different types of adhesions and endo ones are different to others. I would be wanting to ask if it was biopsied and if so was it confirmed as endo in origin though I don't know if that's done routinely. It is also apparently possible for endo to spontaneously heal sometimes or become inactive.

Here are some links about adhesions to read.

healthywomen.org/content/ar...

drseckin.com/pelvic-adhesio...

centerforendo.com/adhesions...

endometriosis-consultant.co...

onlinelibrary.wiley.com/doi...

Emma19 profile image
Emma19

Hiya,

Thank oh so much for your reply. They didn’t state if they’d taken a biopsy. I did get the feeling they weren’t telling me everything so I am thinking of requesting my notes!

One dr said adhesions can be the cause of my pain, the other said it wouldn’t! That doesn’t sit well with me!

X

Holleymuzz profile image
Holleymuzz in reply to Emma19

Hi Emma. I hope your recovering well after your lap. They found endo and adhesions in my lap but didn’t tell me if these were endo adhesions or from previous surgery. Can I ask if you have had previous ops?

When I was in recovery a male dr told me the endo wasn’t the cause of my pain because it was mild but widespread (bowel, bladder, POD) yet when a dr came to see me before being discharged she told me that the stage of endo doesn’t correspond with the pain levels. So i completely understand your confusion. I hope your ok and get answers x

Emma19 profile image
Emma19

Hiya,

I’ve had one previous surgery a few years ago but under surgeons for a ?appendicitis. He said it could be caused from when I had a burst ovarian cyst. It’s very frustrating!! Sorry to hear you to are frustrated!! X

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