Endometriosis UK

Need advice!!

Hi all, this is my first time posting on here. I’m 21 years old and have been suffering with pain ever since I was around 13. After 8 years of battling with GP’s and hospitals, I got diagnosed with endo at the start of this year (2017). I had a laparoscopy on the 15th May 17 and they found a 7cm cyst in my left ovary. This was removed along with endo in both ovaries, and the cyst was begnin. So still months later I kept telling my consultant that I am still in a lot of pain, so they sent me for another scan. Another cyst but in my right ovary this time was found at 5.5cm. He said there’s nothing to worry about and just come back for another scan in 3 months time... I respect his decision and knowledge but I just don’t feel like this should wait!

Also I’ve realised lately (the last few months or so) I have had NO interest sexually whatsoever. This is frustrating my partner and it’s really taking a toll on our relationship. I don’t like it when he touches me up, or kisses me in certain places as I know he’s going to want to have sex and I dread having to say no all the time! I’m so confused and it makes me feel awful, I just have no idea why I’m like this at the moment... I do suffer with depression and since the endo thing has got worse and they found another cyst I’ve been really down but the no sex thing was before that! Has anyone experienced this? I’m at a loss I don’t know what to do and it’s tearing me apart!

2 Replies
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I’m 21 too so I understand how it feels to have all this crap go on at a young age, it sucks so bad. However, I no longer trust doctors opinions about my health anymore and when I should have things done because of what has happened this year. If you are worried I would seek a second opinion and get this taken care of.

I haven’t been interested in sex much due to how much pain I’ve been. This hasn’t affected my relationship with my fiancé at all. He understands and does not pressure me and assured me our relationship is more than just sex. I’m sorry it is hurting your relationship, but I haven’t experienced that with my partner so I don’t have any advice on that front. Perhaps trying to explain to him you still find him attractive and are just having a hard time right now.. maybe it would help him understand.

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I totally understand what you're going through! I wrote a post similar to yours where I'm experiencing pain whilst having sex and a few people have commented with how they are going about it and how doctors are helping, if you wanted to check it out.

If you feel like you need a second opinion, don't wait around you could always go private with the NHS, or even just one opinion. I wouldn't give up with the drs keep going and making appointments (I feel that's what you have to do until they finally do something)

Have you tried speaking with your partner? Does he know what's going on? I know I've spoken to my partner about it and he comes to all my drs/ hospital appointments but it still doesn't make it easier when you have to say no everytime🙄

Hope you get seen soon x

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