Hi everyone 🙋🏼 Ended up here after desperately hunting for answers. (Not so) brief history: 30yo always suffered from killer cramps and heavy periods as well as deep pain with sex (positional). Just accepted it and thought I was one of the unlucky ones. Always told I had a low pain threshold. Fast forward to the start of 2017. I ended up fainting in the shower when the pains started (never fainted in my life). I thought ok this is silly I need to do something about this. And there starts the GP battle. Back and forth to see totally dismissive drs whose only solution was Mefanamic acid. As the year has gone on my periods have become totally irregular (always been pretty much 4 weekly prior). I now get pain when I’m not menstruating (like a burning searing hot pain in my pelvis and lower back - gets worse when sitting/certain lying positions. Back in September it got so bad I ended up in A&E. They sent me home after giving me pain relief. The pain continued and was unbearable. Luckily I work for a dr (not gynae) and she saw how much I was struggling so admitted me for tests. Had an ultrasound and CT which showed nothing. I have subsequently found a great GP who referred me to a gynae specialist (also endo specialist) and he’s listed me for laparoscopy. I’m still in pain daily and just trying to hold out until I get my date.
I guess my question is, has anyone else had negative scans but gone on to have endometriosis diagnosed at laparoscopy? The only comment really made by the surgeon was that my uterus had reduced mobility on pelvic exam. I obviously would rather not have endo (wouldn’t anyone?!) but also the prospect of not getting answers is upsetting. I’m sure many people feel this way?
Thanks for reading x