Options?: Hi all, Bit of background about... - Endometriosis UK

Endometriosis UK

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Options?

lowris profile image
4 Replies

Hi all,

Bit of background about me: After 17 years of miss-diagnosis and me just 'powering on through' I finally had a diagnostic lap in August 2016. During the op they found endo all down my left side which they burnt off. They left a tricky section which is sticking the tube which runs from my kidney to my bladder to my large intestine.

Since my op I have had 7 months of Prostap injections, followed by 6 months of Esmya tablets (technically used in the reduction of fibroids, however my consultant has prescribed them for many of this Endo patients as it stops it reoccurring too quickly).

I have my next appointment on Tuesday 7th November and am just wondering what other treatment options are out there? I don't particularly want to go back on the pill as after 15 years of that I realised how badly they affect my mood. My consultant mentioned contraceptive patches as they don't cause such noticeable affects on your mood.

I would love to hear what treatments you lovely ladies are on currently or what has worked for you in the past?

Thanks in advance!

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lowris
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Are you being seen at a bsge centre?

lowris profile image
lowris in reply to

No, I’m under the nearest consultant to where I live that has experience with endo.

in reply to lowris

If you have bowel involvement then you need to be seen at a bsge centre. x.

bsge.org.uk/centre/

lowris profile image
lowris in reply to

Ooh I’ll look into that. Thank you :)

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