I guess I was diagnosed in the stone age. - Endometriosis UK

Endometriosis UK

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I guess I was diagnosed in the stone age.

Cgrabbe profile image
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I got diagnosed in 1997. Doctors didn't seem to know as much as they do know about endometriosis. I was never put on a diet or had pain management. I was just put on different forms of birth control pills until my body became immune to them. I had 5 laprascopic procedures over the years to clean up the endo. And had half my female parts removed but I still had heavy periods and suffered. So I eventually had my cervix and right tube and ovary removed.

I suffered for years in pain. My doctor never helped with alternatives to make my quality of life better.

Even after finally having everything removed I have more health issues today. Could it be related to my endo?? I'll never get ghetto answers I'm looking for. Now I have neurological issues, I was diagnosed with Gastroperiosis, and I have pelvic organ prolapse. Food makes me very sick. I lost over 70 pounds. I can't eat solid forms of food anymore.

I have a so many doctors office can't keep up anymore.

I guess I have a high pain tolerance because I had to find a way to toughen up and get to work even on the worst days. I've had some pretty rotten doctors over the yearsummer i guess. I couldn't be put on pain meds because I had severe IBS with constipation and pain meds made that much worse.

Life sure is funny. I thought that after all my female organs were removed I would get my life back. Well the jokes on me. That did not happen no I have much worse issues.

I'll get through this too....I hope:(

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Cgrabbe
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JeanOsborne profile image
JeanOsborne

Of course you will. I know how you feel though. Stay strong, you'll get there.

We are tougher and stronger than we think, and we are fighters.

We are always here if you need to talk.

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