Endometriosis UK
34,135 members30,521 posts

Help fight endometriosis by letting politicians know how you feel

Hello ladies,

As some of you might remember, I wrote a post a couple of months ago calling for us to link arms to fight the disease. Admittedly I haven't been very present on this forum since, but I have been active in finding out about ways of campaigning. These include:

1) Completing a survey that is currently on the endometriosis UK website: endometriosis-uk.org/news/t...

You get to answer a series of questions on what is like to live with endometriosis. Be as loud as you can about the poor treatment that we often receive in the medical community. Your responses will then be examined by a cross-party women's group at Westminster.

2) Writing to support@endometriosis-uk.org to request for posters and leaflets to be sent to your address. You will then be able to distribute/hang these up locally, whether it be at your surgery, gym or community centre. As Endometriosis UK is a small charity, they will most likely appreciate your contributing to the cost of printing the campaigning kit and postage fees.

3) Campaigning religiously during Endometriosis Awareness Week from 3rd – 12th March 2017. Use all of the material above, and get creative on how to raise areness around the disease at home.

4) Whether it be as part of Endometriosis Awareness Week or independently from it, organise a screening of 'Endo What', a documentary on endometriosis which has received praise worldwide. I am not entirely sure of how one could go about this, so I am now in touch with the director of the film, Shannon Cohn, for some ideas. Will keep you posted on our correspondence.


5) Writing to your MP and local GP surgery to complain about your disatisfying treatment. Again, not yet sure about a template. Perhaps we could get in touch with Endometriosis UK for guidance?

.... We need to be as loud and active as we can. The world won't start pumping money into research if we don't shout out that that the situation of endometriosis sufferers is intolerable and that it is not ok for the medical community to be so lax with regards to a disease that affects one woman out of ten. I have my own ideas on how mysogyny might have some part in it. Certainly almost systematically dismissing a woman's pain as in her head or as natural to her biology ('we never told you that periods were going to be easy girl!') strikes me as mysogynistic.

I'm counting on you all...!

X Natalie

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