My endo story so far...

[amybaker_xo]

Hi, I just wanted to share my story to see if anyone else could suggest new things for me to try or even push with my GPs.

21/03/2014 - this was my first laparoscopy, I was 18 and rushed into A&E with the most severe stomach pains on my right side. They decided to operate to look around at what's causing the pains (all my bloods and scans came back fine) they also removed my appendix to rule out any appendicitis. They found endo and burnt the larger bits away.

I was still in and out of hospital almost every month with terrible pains unable to control this at home.

16/03/2015 - one night i was rushed in to A&E and they decided to operate again, have another look around to see if anything had got worse. They didn't have any idea what was going on and all tests were fine. They found nothing! My ovaries were "healthy"

Since my last laparoscopy I have had countless internal examinations, scans, told my endo is back, my most recent trip involved a CT scan and I have also been diagnosed with polycystic ovaries (luckily not the syndrome - just large cysts that occasionally burst)

I have recently moved out of the Cambridgeshire area to Surrey, I was seen in the local hospital in A&E and I can't believe the difference in attitude. They are the kindest doctors and nurses, my last hospital told me I shouldn't come to hospital, I don't need to be there, one gyne refused to even see me as it was incurable!

My last CT scan showed I was fairly constipated, this is normal as im on a strong amount of opioids. They gave me a lovely enima and I was still in the same pain, Gyne refused to see me as they believed the pain was constipation - despite my medical records showing Endo and Polycystic Ovaries -

I have luckily been referred to see someone in the pelvic pain clinic but this is in December - I am in bed most days unable to control the pain, like most sufferers! I have recently noticed that I am getting a lot more frequent water infections and I am even struggling to hold my bladder. It's currently 11am and I've been to pee 5 times on one cup of tea and a bottle of water. I just wondered if there's anything someone could suggest or tell me their experiences/ what worked for them. Im now 20 and I am very lucky that I have had this diagnosed under 2 years, especially reading how people have not had a diagnosis for 5 + years.

I appreciate your time & any answers or suggestions

Amy Baker.

[Stellauk]

You need to make sure you get a referral to a BSGE credit centre to treat your endometriosis. Check lindle 's posts for the details.

All the best