Hope you are all having pain free days!
I had a hospital appt this am for my MRI results, which show deep infiltrating endo - hurrah I'm not going insane but what on earth happens next! I have been off work for 8 months now, following severe daily pain from a lap to remove spots of endo. I've had 3 months of zoladex, which whilst come with hideous side effects, brought the pain down though did not completely get rid of.
The consultant started with we will put you back on zoladex and that will be that. To which I argued, am I seriously supposed to spend the next 20 odd years in agony having the odd 6 month break with zoladex?? So I asked can you not remove the deep infiltrating end? No not really, it would turn into a hysterectomy, but you're only 26 so we won't consider it.
I don't want kids, I never have, and I'm very sure I never will. The 'you'll change your mind one day comments' drive me bonkers!!! I just don't like children, and I don't want them. Give me a puppy and I'll be one happy lady! So I push for the hysterectomy, she's sent me home, booking in a second opinion with another consultant, as 2 consultants have to sign off that it is the right thing.
If they refuse, I feel like what is the point in carrying on, I can't leave the house, go out and see friends, live a life of any normality. How do I convince them that for me, this is the right thing?! How do I get them to take me seriously! I have not clue, but if they say no, what do I even try next - I won't be able to hold a proper job being on and off zoladex - and really 20 odd years of on off menopause - the hot sweats are horrific!!!
Any advise welcome! (But PLEASE do not tell me I might change my mind! that awwing that everyone does around babies - I don't - I try to remove myself from the situation! Nothing against them, I just don't want one)
Thanks in advance! x