Endometriosis UK
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In Need of advise help options please . Really struggling at the moment and worried xx

So I have tried the coil which I was asked to do but it has not worked made me really ill. I saw my gyne about 4 wks ago he said that he wanted to see me in 8 wks times I had to go talk to family and be about a hystorectmy and left overy removed keeping the right to help me not need hrt . He took bloods and in my appointment letter was results it said my ovarian fuction was low suggesting that my overlies are not being stimulated to produce oestrogen. So I have been put on norethisterone for 10days to try and I go bk to see him may 12th to talk about the best way forward. Does anyone know what this could mean or what might be best to do. I really wanted to go for surgery . I'm 38 and no kids. But I also suffer with fibromyalgia , cfs, m.e, athritus , epilepsy and degenerative disc desease which is why he was going to leave my right ovary . Could this prob with my overiery change the surgery option or help it do you know ? Also do you know if i can have the op how it would be done ? I have not liked these tablets my skin is so dry and migraines are so bad again and I'm still very drained, more than normal. They started with coil back in October and I had 3 fitted each caused infections and migraines so was took out I have only had 2 wks no bleeding so far but tablets due to finish at wkend so expecting it all to start again . I would be very great ful for your views and advise X sorry for my spelling. Please hope to hear your views and comments hopefully someone can xx 

3 Replies

Hey TwilightGirl,

So sorry To hear about everything you're going through just now and what you've been through. This forum is excellent for support as I often turn to it on my bad days.

The majority of your questions I cannot answer because I'm only 20 so don't know much about hysterectomy but what I can say is I reacted the same way to the coil. The coil really didn't agree with me and actually encouraged the growth of cysts on my right ovary.

I think in preparation for your next appointment you should write all of these questions down in a pad and take it with you to the appointment. It sounds silly, but in the heat of the moment you always forget something! It's important that you are completely transparent with your consultant and let him know all of your symptoms as well as concerns and confusions. If you are unsure of anything or if the consultant is unclear ask them for more information, or better yet when they are explaining something write it down in your pad for further research later. I would at the start of the appointment make the consultant aware you will be taking notes in case they feel uncomfortable and don't know what you're doing with the info!

But I really do wish you all the best, I believe in fate and that everything happens for a reason so keep your chin up and keep us informed of your journey!

Much Love,

Daria X


Hi Daria thank you for your comment . Yes I need to write everything down before I go . It's just nice to talk to others who know what we go tho. As I don't have anyone who really understands was going to leave here as I thought no one commented on posts but thank you it means a lot . 

I think the coil was the worst thing I ever did but I had to try it the first time the nurse did it and tried 4 times but could not do it so week after a go did it but it moved or was not put in right I went over a week with it in my cervix before I could see anyone then I was ref to gyne he did it for me with local but I git infections again so he took it out and said that he did not think pushing hormones in me was the right thing and was no point having more laps so to think about the hystorectmy and removal on one overiery . I am pleased to be given the option of the hysto as my mum n dad said it should of been done 20 years ago when it was offered but due to my age we did not want that but if we had known then what pain suffering it would of caused I would of gone for it. I don't have childern he said if I wanted them I had a 3 year gap to do so and it would be ivf and my partner would need a reversal . But he has 2 older kids and I now have my furry baby who is 3 next week I'm very happy not to have them due to other health problems too it would be silly really I think. If it was just that it was the endo and fibroids and I was healthy apart from that then I would try . I just want to be pain free fingers crossed from that I know I will always live in pain from other things but I am used to it but if one thing can be took away just to make it a little easier then I would .. X 


Wow, that sounds exactly like what I experienced for years with no relief. I even had repeated labs, was put on every different birth control pill or form of estrogen possible...only later discovered that the estrogen was the cause!  Last May, I discovered a treatment which has seemingly cured my endometriosis, PCOS, related pain, and ALL symptoms...I was constantly fatigued and overall felt awful.  My joints hurt and I literally was worried I had cancer or something terminal...that's how bad I felt!   Apparently, many women today are estrogen dominant (birth control pills make it seriously worse because of the synthetic estrogen) and the elevated estrogen in our bodies throws the body out of synch. I began using an over the counter progesterone cream (ProgesterAll) which is also available online. I used it religiously morning and night...into the second month of using it; huge results. No more cyclical migraines, horrible ovarian pain that lasted for days, cysts, or ANY of the terrible issues that I had been experiencing for years. I've currently been on it for right at a year and have never had such regular periods and been so pain free in many years. All of my migraines and 'sinus' migraines and allergies have quit too. I am not taking any birth control pills or anything that could possibly increase estrogen, as the progesterone naturally balances it and counteracts the effects of estrogen...thus, the ovarian pain from my ovaries being literally fried by too much estrogen has totally stopped... I first started experiences all of those symptoms with the use of birth control pills when in my early twenties...I am now in my mid thirties. Months after using progesterone the endometriosis, all symptoms of it, literally vanished as the elevated estrogen was no longer worsening it, etc. This is just my personal experiences but please consider reading up on estrogen dominance and the use of progesterone to counteract too much estrogen! It literally gave my life quality again and ended all of my pain and the constant sickness.


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