Newbie

[zoehutchy]

Hi all,

New to this forum and newly (but finally) diagnosed with Endo. Awating scan for more info and feel very anxious, confused and unsure what's to come.

In sooooooo much pain and so tired of being in pain and tired and emotional and a mess. Thought finding some people understand may help so here goes......

HELP...........................

[applebird]

Hi there,

Have you had a diagnostic laparoscopy? It's the only way to diagnose Endo, scan unlikely to show very much, unless mri? Endo resolved is a great website with lots of information on Endo and treatments for the disease - both medical and holistic - very practical. Explained so much to me.

Everyone here will give a lot of support x

[Jd27]

Your not alone I only joined last night

You fill like your in limbo

Lost

But reading all the story's on here has opened up my eye I'm not alone neither are you x

iv had this 22 years got my diagnosis March last year after years of misdiagnosed

Felt like me again till last August when it came back

Now I'm back to square one

So please stay strong your are not alone x

[BROOKE2003]

Completely understand . I think I am going mad with the pain! Just had a recent flare up & was in agony in middle through to early hours of morning!!!!! I had to go back to GP who finally gave me meds to help! I was only on a low dose of codeine & now I have other meds which if the pain is really bad I can take !

I also find I am soooo fatigued physically & mentally & emotionally a mess! So now i am going to have a lap & I am hoping for a good result & at least feel now I am a step closer to a pain free life! I have a few colleagues who have had good results which gives me hope x

[Jd27 in reply to BROOKE2003]

some days I think to my self no way can I do this today

Like you said it's all the other stuff you have to deal with not just the pain

You do fill like your going mad coz it never seems to stop

I hope it all goes well for you and try not to get to low

talking on here does help and I'm here to. Lol

[zoehutchy]

Thankyou all, don't know anyone else with it and no one seems to understand. Hearing all your stories and your great feedback does help so much.

Need an ultrasound to rule out a few other things and xrays due to years of gastro trouble too then will be the Lap. My consultant is sure the Endo may be causing all my problems.

I am so very very blessed to have had two beautiful.children but feel I don't fully have the energy or patience for them as I'm so fatigued and cranky from the pain.

I am mulling over having Merina coil fitted as a first step to manage the pain but had one removed in utter agony in a&e a couple of years ago so it makes me anxious.

Such a draining journey for us all and so so unfair, I feel that way anyway

Thankyou for the words and support

I wish you all the very best and as minimal pain and upset as possible on your journeys

Zx