Taking Zoladex & livil for endometriosis ... - Endometriosis UK

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Taking Zoladex & livil for endometriosis I'm out of my depth

cassimia73 profile image
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Hi new to forum. 41 years old had constant pelvic pain for 18months originally diagnosed with ovarian cysts but when I had lap it was discovered I had severe endometriosis. They put me on pill for 3 months didn't work so now they put me on zoladex & livil (hrt). Been on it 2 weeks & I feel awful. Headaches, vomiting, paranoia, anxious & I'm forgetting things. Still in a lot of pain. I work full time in a warehouse so no sitting down on job can't have time off as they don't like it. I'm struggling to function at home & work. I just want to lie in bed & cry. Feel like I'm at my wits end. Needed to vent to see if any of you ladies will understand what I'm going through xx

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cassimia73 profile image
cassimia73

Hi thanks for replying. Stage 4 endometriosis. Severe adhesions to rectum & ovaries. They couldn't remove cyst as it was stuck with endo. So They closed me back up. Symptoms with endo are constant sharp pelvis pain feels like I have an elephant sitting on my pelvis stabbing me weird I know but that's how it feels. Chronic tiredness & when the pains severe it makes me feel sick. I have pain whether I'm on a period or not. Gynaecologist tried me on pill 3months but that didn't help. She wont give me a hysterectomy as its too difficult (her words). So my only option is zoladex. Have to have it for 6months along side livil. I really hate feeling like this.

Ppdotter profile image
Ppdotter

Hi. I was on zoladex with livial for almost 2 years due to severe endo. The first two weeks I spent in bed with the worst migraine of my life and thought I was going out of my mind. Then the moods etc but i stuck with it and despite gaining 2 stone I did start to recover as I had no periods. Its an aggressive treatment but if you can persevere it eventually pays off and no pain more energy! Really feel for you been there done that. I suffer awful migraine too ally life. Hope things settle for you take care x

Sarahjane1967 profile image
Sarahjane1967

You poor girl, this happened to me too, with a general gynae - he put me on Prostap and livial and I felt awful, so he changed the HRT 3 times! All crap.

I had stage 4 and have since found out these injections are ineffective over stage 2. I've just had an excision and hysterectomy and feel better already, post-op pain notwithstanding (3 weeks on)

Have a look at Lindle's list of specialists in your area and insist on a referral. It's very insensitive and unfair to let you go on like this.

Sending love x

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