Confused with Potential Diagnosis - Endometriosis UK

Endometriosis UK

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Confused with Potential Diagnosis

RoseannaMary profile image
4 Replies

Hello,

The last few months I seem to have been passed around from health service to health service. I experience cramp like pain regularly throughout the month, discomfort during intercourse and more recently intense and debilitating pain after intercourse that lasts around 1 hour. I sought help a few months ago but was referred to have an STI test first. At the clinic they suspected I may have Pelvic Inflammatory Disease and gave me a course of nasty antibiotics. My tests for STI's all came back clear and nothing was followed up from there apart from the pain after intercourse soon began.

I went back to my GP who conducted an internal exam, although did not say anything about that, but suspects I may have Endometriosis. I was sent away with an information leaflet and I have been referred for a Scan as he said surgery to find out would cause further complications. However, I have been reading that a scan will not be able to diagnose this condition? I'm wondering why I have been referred for a scan if the Dr suspects I may have this ?

Has anyone else had this experience? I am not sure how to deal with it and feel increasingly teary and anxious about everything since speaking with my Dr last.

Thank your for your time and any guidance

xo

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RoseannaMary profile image
RoseannaMary
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4 Replies
RoseannaMary profile image
RoseannaMary

Hi Lindle,

Thank you for your kind and speedy reply.

He never said anything about ovarian cysts and simply said he supects its is Endometritus however didn't want me to have the key hole surgery so would refer me for a scan. I just find this so odd that he says this when the information clearly says it cannot be diagnosed this way.

I was on the contraceptive pill but had to come off it because of increasing migraines I was getting on it, I came off it about 3 months ago. He only examined me vaginally and it did cause some discomfort however not to the extent of the pain after intercourse. But I was in cramp like pain until the following morning.

Thank you for the link to some of the information on your posts - I feel as though I need to get a second opinion at another surgery so I plan to take notes of what I know to be true for my body to give the Dr specific information.

This has been really helpful

xx

RoseannaMary profile image
RoseannaMary

Hi Lindle,

Sorry yes I did mean Endometriosis -I have dyslexia which is never my friend especially when spelling medical terms! Haha

Sorry for the confusion

Xx

Dixiechick8 profile image
Dixiechick8

I've had a very similar experience. I've been told by gynecologist that I should try to wait 4 months before having laproscopy and sent away with pain killers, anti sickness meds and tranexamic acid for when I'm bleeding. I'm in chronic pain most of the time, feel nauseaus and have a swollen tummy. Finding it difficult to work through all symptoms so thinking I may have to push for laproscopy sooner although my gp isn't keen for me to have it unless I really have to so is sending me for another scan. I know how awful it feels and I'm so sorry your going through it (didn't realise how many women it affected until I started researching this condition after it was mentioned to me by my gp). Looks like I will be having a scan soon, but as you said, that doesn't seem to tell you if you have endometriosis and if so what stage you are at. Sorry I don't have more answers. Just thought it might be if some use that there are others in the sane situation. If I find anything out, I'll try to let you know.

Take care

Xfx

RoseannaMary profile image
RoseannaMary in reply to Dixiechick8

Hi DixieChick,

Thank you for your response. Hearing from you and Lindle and reading other posts has helped keep me calm since being told. I also experience nausea on a very regular basis and up until now only associated with my body just being over sensitive or the IBS I was quickly diagnosed with last year.

I feel lucky that it is at least being acknowledged by someone however I feel that the journey has only just begun to get a definitive diagnosis from a specialist. I feel more informed now in the last few days of researching than I did sat in the GP's office. I will let you know what happens as well - good luck in trying to get the care you want and need.

xx

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