I have stage 4 aggressive endo. I had an 8cm chocolate cyst removed in January this year and they didn't do anymore because I want children. I am 38 and have had many symptoms. The consultant advised me to get pregnant - to try naturally whilst I await an app with the ivf clinic. Two months since then no joy mostly because of the pain of intercourse. so the consultant did some investigating and turns out I had to have more surgery - so last week I had two chocolate cysts removed from vagina. He now says it's worse than he first thought and I need to blast it with medication to stem it getting worse and then try ivf.
I don't want to take medication to have fake menopause and take HRT. I don't want IVf.
I am in turmoil wondering what is best and what to do next.
I am trying acupuncture tomorrow for the first time. But this will help to lengthen my 23 day cycle but won't stop the endo multiplying.