I was diagnosed with PCOS in 2010 and this explained a lot of the problems I had been dealing with over the previous 23 years. I was put on the birth control pill by my GP when I was 11 to deal with excessive pain and generally feeling unwell for 3 weeks out of 4. This did help with feeling unwell but the pain stayed during my periods. I hadn't really been a 'hefty' girl until then but I found that losing weight (even though I did a lot of sports) was increasingly difficult. I kept taking the pill, on and off, for the next 18 years but started feeling unwell when taking it and decided that I preferred to stop taking the pill and just deal with it.
I went to see my GP back in 2010 because I had been bleeding for over 8 weeks and started feeling dizzy and generally had low energy. My GP referred me for blood tests and ultrasounds and PCOS was diagnosed. I received 2 medications to help deal with the severity of my bleeding (on average 7 days and using 10-15 pads a day) and the pain. These did little to nothing to improve the situation but my period did even out again although the severity stayed the same.
My periods had always been painful but over the last 6 or 7 months the pain was starting to increase drastically. As this was the same kind of 'crampy' feeling as normal, I didn't really pay much attention to it but I found that I was reaching for the painkillers a lot more. Then, about 4 months ago, it became really bad and I was doubling over at work. Nearly 3 months ago, my line manager send me home and I stayed at home until last Thursday with continuous pain. In this period I have been through the following pillar-to-post:
1. visited A&E - got send home as bloods and urine were 'fine'
2. visited GP - referral to gynaecology (gynae) and received liquid morphine prescription
3. attended gynae - had ultrasounds of womb, ovaries and kidneys - results: PCOS confirmed, slightly enlarged kidneys - referred back to GP for referral to pain management or gastro
4. visited GP - referral to gastro for possible bowel problems
5. attended gastro - 'Why are you here, they already know you have PCOS. There will be nothing I can do but will send you for CT.'
6. had CT - no issues found and referred back to GP
7. visited GP - referral back to gynae for suspected endometriosis
8. attended gynae - will do laparoscopy (in next 4 weeks) but might not find anything
I am now 36 years old (my husband is 43) and, although we would love to have a family, we came to the realisation that with my PCOS this would be very difficult if not impossible and have resigned ourselves to this fact. We would love to adopt and this is a discussion that we have been having since 2010.
I know that standard procedures will be to put me on HRT first and deal with endo via laparoscopies and that hysterectomy is only a last resort but can I ask for the hysterectomy regardless of these procedures? I have now returned to work (on tramadol and diclofenac) but the pain is still really bad and I really cannot see myself continuing like this. I am at the end of my resolve.
Sorry for the long post.