I'm taking synarel at the moment, what si... - Endometriosis UK
I'm taking synarel at the moment, what side affects are others having whilst using this medication?
It is much like all the other GnRH drugs in the side effects it can produce. Though they are reputed to be better managed because it is a nasal spray rather than a monthly implant, and you can quit a lot quicker too when you do have a bad reaction.
Use the search box on the green bar - type in
Lupron, Prostap, Decapeptyl, Zoladex and also GnRH and you will see this subject crops up every day on the forum.
A few ladies do report very few side effects and get on well with the drugs - a lot have very grim time indeed. So many 1st hand experiences on this and many other forums if you know the phrases to search for.
I even saw some you tube videos from one lady using Synarel so look for that too.
It is very new to the UK and there won't be too many Brits who have been on it yet, but there are some reports on the forum from Singapore and Australia from ladies who have been on it.
Hi Impatient.
Have a look at this when you have a few spare minutes.....
.m.voices.yahoo.com/what-doc...
Regards,
Barbara x
Hi Barbara,
I have a huge list of anti-GnRH website articles including that one.
on personal level I am so furious about these drugs being used for endo indisciminately,
Very little to zero warnings being given to patients, Rarely is the ptient advice leaflet given before of after the 1st dose.
No follow up care provision- no telephone hotline for help with side effects which the manufacturers should be supplying.
There may be a justifiable reason for their use in a limited number of patients, ie those with fibroids - but they are just poison to everyone else.
Even to those who do manage to improve the quality of their life for a short time.
As for any doctor condoning extended use of the drugs for benign conditions like endo, they should be shot.
But regrdless of my own opinion on the drugs - every woman should be given all the information they need in advance to make an informed decision before commencing the drugs - and that is not happening nd there is no excuse for that except laziness and greed on behalf of the manufacturers and the medical profession.
Given just how many ladies are asking about these drugs on daily basis - clearly there is a communication breakdown on a huge scale.
I couldn't agree more with you. I'm not going on them if I can help it!
I will keep my fingers crossed that my mirena (3rd time lucky?) continues to be a positive experience. And that my pain can stay at a manageable level.
I would be very interested in reading any articles that you've uncovered!
I hope you are well?
Kind regards,
Barbara x
