COULD ENDO BE BACK

I HAD TOTAL HYSTERECTOMY 2YEARS AGO EVERYTHING REMOVED AT AGE 45 DUE TO ENDO.REFUSED TO TAKE THE RECOMMENDED HRT AND DONE WITHOUT.THE NIGHT SWEATS WERE THE WORST,THEN DEPRESSION,AND STILL HAVE LITTLE ENERGY.JUST WHEN I AM GETTING OVER THE WORST OF THIS I NOW HAVE BEEN HAVING BREAST PAIN,PELVIC PAIN AND BACKACHE JUST LIKE I DID BEFORE PERIODS EVERY MONTH.ONE DOC SAID ITS IBS AND ANOTHER THINKS ENDO IS BACK.ONE EVEN OFFERED ME HRT OF ALL THINGS.I DONT KNOW WHAT TO DO AS THE OPAIN HAS BEEN AWFUL.ANYONE ELSE HAD THIS?X

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  • Yes the endo never really goes away unless they get every last bit of it!!! I'm 46 had hysterectomy took HRT for a bit, I'm off that now!! Mine flared up recently but thank god it's eased off a lot I can work etc still bloated and tired. Endo has been found in the lungs and most recently on a brain tumour on one lady, awful isn't it!!! Hopefully yours will ease off too. Fingers crossed xx

  • Sorry you are suffering so much. It's soul destroying to go thru the trauma of surgery and really believe that your problems with endo are over just for those miserable symptoms to return. Like you, I was 45 when I had a tah. That was 4 and a half years ago and I was not given HRT because of stage IV endo. Just in the past couple of months I've started feeling similar pain have developed painful breasts and am much more emotional (just like PMT symptoms!). I asked my consultant if it could be coming back again and he said 'No'! I asked for a CA125 test but he said that there was no point but did agree to my having a blood test to check my oestrogen levels. I'm waiting for the results now. No painkillers seem to shift the pain but I have noticed that if I eat ginger it subsides! Good luck x

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