I wrote a poem and thought I'd share, it doesn't rhyme or have rhythm but neither does my pain....
I'm sitting in a prison
with nowhere to escape
I sit here waiting for it all to be OK
I make no plans and have no life
For fear of letting people down
My body is my enemy
I want to take it off
It has strangled my dreams, plans and hopes
I live just to bring my children up well
Without them there would be no point in life
I see people around me
Taking for granted the little thing I wish I could do
They moan about money, their hair and the weather
All I want is to wake up without pain
How can I be happy in this lonely, broken shell?
The things I want are simple
I do not wish for much
I want to walk my children to school
I want to work and earn a wage
I want to mow my lawn and paint my kitchen
So instead I stay on my sofa
my hot water bottle slowly cooling
Watching people walk past my house in the sun
Waiting for my pain to end or to fall asleep
I cannot see any light at the end of my tunnel
There is no cure for my broken body, only more pain
The worst bit is that it's my problem and I don't expect anyone to come and save me from my hell, I just wish I could save myself x
Kat (endometriosis, ehler-danlos hypermobility syndrome, migraines, restless leg syndrome, IBS, gastric reflux, pelvic adhesions, depression)