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Encephalitis International

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My mom's memory problems!

I am very grateful to all the loved ones who gave me hope and energy with their messages during this period.🩶 Almost a year has passed since my mother was...

I am very grateful to all the loved ones who gave me hope and energy with their ...

•2 days ago

Tension

I have had viral encephalitis for over 1 year now, and the biggest issue I have at the moment is tension in my head and neck. I was taking Xanax and Clonazepam...

I have had viral encephalitis for over 1 year now, and the biggest issue I have ...

•4 days ago

Report of mine 🙂

After every night there will be light 💓 Hello everyone out there, sick people and relatives. 👋😊 I wanted to give you all an update on my...

After every night there will be light 💓 Hello everyone out there, sick people ...

•4 days ago

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Is an ABI a hidden disability?

Hello It’s six years since I had VZV viral meningoencephalitis and as a result an acquired brain injury. I suffer with panic attacks and anxiety as a result...

Hello It’s six years since I had VZV viral meningoencephalitis and as a result...

•5 days ago

How long to heal?

My daughter 22 fell ill with encephalitis in July this year. She responded very well to IVIG and steroids for 5 days. She left hospital feeling well enough to...

My daughter 22 fell ill with encephalitis in July this year. She responded very ...

•7 days ago

Does advocating for yourself stress you out?

Hi all, I don't know how to word this, but I'm prone to stress and I find advocating for myself extremely stressful when I'm not listened to and/or understood...

Hi all, I don't know how to word this, but I'm prone to stress and I find advoc...

•18 days ago

Devices to stimulate brain recovery

Hi, has anyone tried any devices to stimulate brain recovery? I saw an ad of Neurosym on Facebook: https://nurosym.com/products/nurosym I wonder how much that...

Hi, has anyone tried any devices to stimulate brain recovery? I saw an ad of Neu...

•25 days ago

Herpes simplex encephilitis - no change

my mum was diagnosed with hsv encephilitis last November. She was discharged from hospital in April into a neurological rehabilitation centre. She can walk...

my mum was diagnosed with hsv encephilitis last November. She was discharged fr...

•29 days ago

article in the Sunday Times

Hi all, I was interviewed about the explosion at Saxavord spaceport a few weeks ago and it turned out I’d met the journalist before - I had to tell him I...

Hi all, I was interviewed about the explosion at Saxavord spaceport a few weeks ...

•29 days ago

Anti GAD positive

Anti GAD has come back positive for our daughters undiagnosed encephalitis. Has anyone experience with what this is or means? Her symptoms are all behavioural...

Anti GAD has come back positive for our daughters undiagnosed encephalitis. Has ...

•1 month ago

Hsv-1 encephalitis battle- partner's question

Hi, my wife is going through Herpes Encephalitis at the moment. She's 38, the same as I. We are in our 7th week. I took her to ER in a good condition when that...

Hi, my wife is going through Herpes Encephalitis at the moment. She's 38, the sa...

•1 month ago

21 with encephalitis need some help

Story in bio I’m just more wondering and worried about if anyone else’s memory loss was bad or if they had memory loss problems and if you live in the uk do...

Story in bio I’m just more wondering and worried about if anyone else’s memory l...

•1 month ago

Sleeping Meds

Hello Everyone, I have had Viral Encephalitis for just over a year now and struggle with sleeping, much like many others. Since I was released from the...

Hello Everyone, I have had Viral Encephalitis for just over a year now and stru...

•1 month ago

Drinking

I have just passed 1 year in recovery from Viral Encephalitis. I still take medication (anti-depressants & sleeping aids). I still have symptoms (headache,...

I have just passed 1 year in recovery from Viral Encephalitis. I still take medi...

•1 month ago

Happy Days

Some guidance: Routine, rest, good diet and mental and physical exercise where possible. It takes time, I'm in my fifth year and still making progress. (Can...

Some guidance: Routine, rest, good diet and mental and physical exercise where...

•2 months ago

HSV 1

Me again.The brother was finally admitted to the university clinic. As I already said, I suspect that after the primary HSV1, he now has some autoimmune...

Me again.The brother was finally admitted to the university clinic. As I alread...

•2 months ago

Frontal lobe scarring?

My daughter has unconfirmed auto immune encephalitis.. has been hospitalised twice since July this year. Her symptoms have now changed to poor focus, poor...

My daughter has unconfirmed auto immune encephalitis.. has been hospitalised tw...

•2 months ago

7 weeks

7 weeks on. In hospital for a total of 27 days. Still having 8-10 seizures a day! Does it get better?

7 weeks on. In hospital for a total of 27 days. Still having 8-10 seizures a day...

•2 months ago

No clear diagnose

Hi there, I am from austria, 32 years old, and I got a neurological disease in june 2024, I was 16 days in hospital. It start with cognitive disfunctions. On...

Hi there, I am from austria, 32 years old, and I got a neurological disease in j...

•2 months ago

Notifying DVLA & Returning to Driving & treatment.

My wife was diagnosed with encephalitis following at my insistence that she have a MRI scan following a seizure and collapse. This was just over 3 weeks ago...

My wife was diagnosed with encephalitis following at my insistence that she ha...

•2 months ago

Sleep and recovery

I have auto immune Enc., I'm in my fifth year of recovery and progress can be slow. I have a severe spine injury so I take 2 paracetamol and 10mg morphine...

I have auto immune Enc., I'm in my fifth year of recovery and progress can be sl...

•2 months ago

Encephalitis and Sleeping

I am approaching 1 year with Viral Encephalitis, and my biggest issue is sleep. Either my brain does not shut down and I cant fall asleep, or I wake up around...

I am approaching 1 year with Viral Encephalitis, and my biggest issue is sleep. ...

•2 months ago

Decay

Back to square one.

Back to square one.

•3 months ago

Recording the Enc. experience

Since the Enc I've been interested in recording things that interest or affect me. It's the little things that matter

Since the Enc I've been interested in recording things that interest or affect m...

•3 months ago

Reminder - My Brain: My Story: My Family Event

We would love you to join us in Newcastle, England or virtually at My Brain : My Story : My Family this October 12th (10am to 6pm) This hybrid event is...

We would love you to join us in Newcastle, England or virtually at My Brain : My...

EncephInternational

Partner•3 months ago

Sleep helps with brain recovery

Medical News Today usually has updates on latest research. Here's one on the benefits of sleep for repairing neurons. medicalnewstoday.com/articl...? "One of...

Medical News Today usually has updates on latest research. Here's one on the ben...

•3 months ago

Managing seizures post encephalitis

Hi, I was hit with encephalitis in December 2017 and continue to struggle with seizures and a variety of other symptoms. Coming out of the hospital I had 10...

Hi, I was hit with encephalitis in December 2017 and continue to struggle with...

•3 months ago

Encephalitis and Encephalopathy, higher risk of CTE?

Hi All, bit a of a background i have been playing rugby since the age of 15 im now 37 and i suffered from Viral Encephalitis when i was 17 spending a month...

Hi All, bit a of a background i have been playing rugby since the age of 15 im...

•3 months ago

Herpes simplex encephalitis

I already wrote that my brother was diagnosed with HSV1 in January of this year. In the last week there is a sudden deterioration. Again he does not know his...

I already wrote that my brother was diagnosed with HSV1 in January of this year....

•3 months ago

HSV and autoimmune encephalitis help

Hi, i am the carer of a 29 year old sister who has both HSV and autoimmune encephalitis. She was initially found to have HSV and treated, was very pleasant...

Hi, i am the carer of a 29 year old sister who has both HSV and autoimmune enc...

•3 months ago

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