Cambridge Survey

[Scots_dad]

Has anyone seen the neurologist on X that's looking to do the survey with people that have had AI Encephalitis?I couldn't find the link but sounded promising.

[Scots_dad]

Anyone seen it ?

This is the you tube video

[kitnkaboodle]

You mean this? bit.ly/MM_PATIENTS2024

Info:

Kaira Naidu MSc, a researcher at the University of Cambridge, invites you to take part in an important study on autoimmune encephalitis, a rare condition for which more research is needed. “We’ve designed an anonymous survey to hear directly from people living with autoimmune encephalitis. It asks about your mental health, patient-clinician relationships, and how your condition interacts with hormones, among other things. If you participate, you can help us uncover patterns and better understand the unique challenges faced by the autoimmune encephalitis community. Your insights will guide really important research, and has the potential to improve care for others.”

Patient Survey Details: Aimed at autoimmune encephalitis patients to explore their symptoms, healthcare relationships, and health status. Takes ~30 minutes to complete (participants can pause or stop anytime). Participants can enter a prize draw with two prizes of £200 each

Copy the survey link and paste it into your browser: bit.ly/MM_PATIENTS2024

Clinician Survey Details: Focuses on hormones, clinician-patient relationships, and autoimmune disease triggers. Takes ~15 minutes to complete. Participants can enter a prize draw with two prizes of £200 each. Cope this survey link and paste it into your broser: bit.ly/MM_CLIN2024

Participating is simple! Click the link here to access the survey.

Each survey takes about 30 minutes to complete, and you can pause to take a break anytime. And as a thank-you, you can enter a prize draw to win a £200 Amazon voucher. Winners will be notified after the surveys close. If you have any questions, please don’t hesitate to contact Kaira at [e-mail]. Thank you for helping us improve our understanding of autoimmune encephalitis. Together, we can make a real difference!

[Scots_dad in reply to kitnkaboodle]

Yes thank you for sharing