Hi all. My autonomic neuro team (POTS) suggested I have hEDS and referred me to Rheumatology. The NHS Rheumatologist said yep probably...but proceeded to write to me and my GP saying I have fibromyalgia (which can be caused by EDS right?). Just feel so disappointed and tired of advocating for myself for so many years! I
Has anyone been able to get their GP to refer them to a clinic/doc who can help diagnose EDS. Or would you recommend seeing a specialist in London instead- if so suggestions welcome!