Hi, I'm new here and I was wondering if anyone could help me out at all? I've been having bad pain in my joints and body for about 6 months or so now, and pain in my back for about 2 years. I've been going to Drs for years and no-one has seemed to help, but then my hydro-therapist (i was referred for my back) said that I am hypermobile and with the fatigue and constant pain I have she suggest I look at EDS.
I've looked at the criteria for it and I score 8/9 on the Beighton Score and On the Brighton score I think I match the major ones, I've got over 4 on Beighton score and I have constant pain and have had for 6 months in my wrists, elbows, knees, hips and ankles, with intermittent pain in my neck, shoulders and fingers and toes.
I dont know if I have subluxation, but sometimes I feel like my shoulders and ankles like 'move out of place' it doesn't really hurt though, just feels odd, not sure if that's the same thing. I do also have to wear glasses and I believe their for near-sightedness and a stygmatism (spelling?).
I'm just wondering if it's worth writing all of this down for my visit to rheumatology, as intially my doctor suspected CFS, but this made me think it could be something else? Do you think it could be EDS?
Thank you for your help