I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I also have a comprehensive clinical features of Marfans/EDS but I am playing the normal waiting game to see a geneticist. I do have an appointment with a physio who knows a lot about EDS, but my question is:
Can a physiotherapist who is trained in EDS, give me a 'generalised/semi-official diagnosis' of EDS, which can then be subtyped by a geneticist once the skin tests and other tests are made?
I am just struggling to get through the week with the pains I have and subluxations everywhere, that I need something very close to a diagnosis to get better right now so I can actually be clear to my work, friends, family whats going on and how to manage it.
Any advice is appreciated,