hi my name is charlotte I was diagnosed back in April with eds type 3, since then I have been referred to pain management and physio, the doctor who diagnosed didn't give me much information told me what I have and then sent me home and will see my once a year. so now I am confused as to what I do now I haven't have any actual test other than him clinical diagnosing me? and now I feel like I am just left to get on with it, with no support other filling me with painkillers. I am also concerned regarding mu children and I would want to get them tested to see whether they have it or not. I mean I have so many things going on with my body and I feel like I am just getting worse and unsure what to do?