Hello! A newbie here: Hi everyone... - The Ehlers-Danlos...

The Ehlers-Danlos Support UK

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Hello! A newbie here

BadtotheboneBarbie profile image

Hi everyone-

Living with Ehlers-Danlos is literally a pain! I've learned that I have to live each day like a cork - yup, a cork. I float along with the pain and don't fight it as much - I find this helps to live with the pain that is a daily walk with Ehlers-Danlos (a sense of humour helps too as does chocolate!!!) Hang in there! It can seem like a very frustrating process to find an excellent doctor, but once you do, they can help you navigate this life SO much easier! Surround yourself with excellent friends - they make a huge difference too.

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BadtotheboneBarbie profile image
BadtotheboneBarbie
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4 Replies
Tillyray profile image
Tillyray

Hi and welcome. That is an excellent philosophy you have 👍. Glad you've joined. Everyone here is supportive.. Take care..(I'm loving your name by the way! 😀 xx

andreasuperstar profile image
andreasuperstar

Hi there and welcome badtothebonebarbie😁✊🏼 what a very positive post and a great username. I chose mine to send out a message that Andrea takes no cr@p off of anyone. I don't always feel like that. But somehow trying to project it helps. Ps don't forget to lock your post for security. Go back into it and click on the radio button 'for this community only'. You'll then see a little padlock on your post and more people will respond 👍🏽👍🏽

Jay66 profile image
Jay66

Hello, the more the merrier on this site - we must be one of the smaller communities on here - and you are so right about chocolate!

Scherette profile image
Scherette

Hugs to you. I'm a newbie, too. :)

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