I was diagnosed with Ehlers Danlos Type 3 Hyper-mobility around 3 years ago (at age 20) after numerous doctor and consultant visits, as many of you may relate. I score 9/9 on the Beighton scale and dislocate daily, but being so bendy means that 99% of the time my joints relocate on their own within seconds!
I have now been diagnosed with endometriosis, with a AMH of 7.7, only one ovary working and fibroids. I have decided to start to try to conceive as time is not on my side and I could be infertile in the near future.
However, I have tried to make an appointment with my EDS consultant to discuss this and any issues I may have, along with any precautions I need to take beforehand. Helpfully, my consultant has discharged me, as there is nothing more she can do and self help is they only option. As many of us know, re-referral will take quite a while and the chances of the same consultant are low.
Can any of you tell me any issues you had during pregnancy, any precautions you took before hand and things which helped? Also any stories are welcomed, relating to either condition and the roads you followed.
Thanks in advance!