I was diagnosed with Hypermobility (Beighton score of 9), at the age of around 11. Now at age 19, it wanted to take over my life. However, with my own determination, I am trying not to let it win. Despite the daily struggle of pain, sublaxicating/dislocating joints, it will not win, at least not as easy as I expected. All of my joints are hypermobile, and I can do some pretty weird tricks with my arms, they're a great party trick, my skin is also stretchy and I do bruise quite easily. At the minute it is suggested that I have HMS (Hypermobility Syndrome) but I am waiting for tests for a CTD (Connective Tissue Disorder) such as EDS.
Since the struggling increased in around January 2015, I saw my GP who referred me to Rheumatology as she suspected Arthritis, despite all my inflammatory markers and the other markers that they look at being normal.
I have now been seen twice by Rheumatology, and have 4, potentially 5 new referrals.
Further appointments to help me in my future. Hyper mobility is one of those things, its a struggle and its invisible awareness and support from family, friends, colleagues and medical professionals will help me through.