Is this definitely hereditary?

Hi everyone,

My mother died when I was seven years old, she had a Cesarean section and hemorrhaged. Earlier this year my Dad died and after looking through some of his papers I came across my mother's death certificate and under cause of death it says:

1a, subcutaneous hemorrhage and pulmonary collapse due to

b, ceasarian section.

11. Hyperlastoasis cutis (Ehlers-Danlos disease).

I have an appointment to see my G.P in a couple of weeks. After looking up Ehlers-Danlos, It does explain a lot of my past medical history, the other kids at school were always fascinated by my doughy skin.

This site has been a great help, but I still don't understand how this illness/disease contributed to my Mother's death!

6 Replies

  • Unfortunately yes eds is a genetic mutation and is passed on through your parents' DNA. Why not take your mother's birth certificate with you and ask for an explanation of they believe happened? X

  • sorrh death certificate *

  • yes that's what i intend doing, but appointments not till 1st June, so just thought id ask on here first......Thank you.

  • I'm sorry to read about that. It struck a chord with me, as although I have not yet had a diagnosis of EDS, I have recently been told by a podiatrist that I am hypermobile and had a second orthotics nurse (? Specialist?) ask about my hands and confirm it on seeing my bendy fingers. I have many other symptoms besides and a current diagnosis of FND with CFS.

    The reason that your post struck a chord was because I became a mum in 2008 but the labour was difficult and I ended up with a c-section and within 48 hours I haemorraged because my uterus tore in two places, so I had an emergency hysterectomy. I am very lucky to still be here, after 8 hours in theatre and a lot of transfusions. They couldn't tell me why it had happened.

    Thankfully, my child is healthy but I now worry that I may have passed something on that hadn't been noticed in me. I'm now 41 and, funnily enough, also going to my GP on 1st June to explore the likely possibility of EDS and hopefully, finally, get a diagnosis which explains much of what my body has been doing throughout my life.

  • Thanks for your reply, as i was growing up my father always told me that my mother had been "one skin short" and therefore took longer healing. I can only assume that he never questioned the cause of death on her death certificate. I have had 6 normal births, but I have had and op on my bladder and two hernia operations, also several muscular problems. I had never heard of Ehlers-Danlos up until a few weeks ago, but it does explain a lot of things now. So glad you and your child are ok, my brother was born healthy even though my mother died.

  • Hope you manage to get some answers soon and the appointment went well.

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