Why when i have been housebound for o... - The Ehlers-Danlos...

The Ehlers-Danlos Support UK

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Why when i have been housebound for over a year with only my husband able to take me out is there no readily availble information

madmum1994 profile image
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Not through the GP,Specialists ie Rhumatologoy,neurology they tell you you have all these things wrong, Elhers type II? 21 miscarrages fibromyalgia irritable bowel syndrom,muli level dics degnerativer disc disease 4 discs are now buggered in 2 years, the list goes on and now i am being hounded by the job center and Atos and the Dla with still no support i have now self refered to the Brighton wheelchair service but i need help with all these benefits and the amount of stress it is putting on my family is disgusting my husband is my full time carer and lives with Aspergers, I at last found an OT but he has not been able to help with these agencys. I can get no one to home vist and i am not able to travel accept by ambulance at present where do I/We get help my children also have been told tthey are also affected

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