Hair loss: Hi Over the past few months ive been... - EDMESH

EDMESH

2,017 members348 posts

Hair loss

4 Replies

Hi

Over the past few months ive been experiencing quite a bit of hair loss. I dont have any bald patches.. but just lots of it is falling out and ive noitced my hair is becoming really thin.. which is quite scary. I dont want to loss my hair..Is there anything i can do to prevent anymore hair loss?

4 Replies
Hedwig121 profile image
Hedwig121

meactionuk.org.uk/symptoms....

Hi. You must be very worried that your hair loss will get worse. I've put in the link above to show you that hair loss is a recognised symptom of ME-CFS.

Have you been to your GP to discuss the situation? If you haven't it might be a good place to start. The GP may do some blood tests especially one to check your thyroid function. This might be the problem. If you have an underactive thyroid gland your hair can be dry and brittle along with your nails. Does your hair fall out at the roots or is it just breaking off?

When I became ill I lost a lot of hair. I still do. More noticeable when i wash my hair. I try not to brush it too much now as I hate seeing the sight of the hair in the brush.

My hair is thinner now but it can't be that bad as I think, as the hairdresser always says it's fine. I've changed my hair style too so that I only have to wash my hair and when it dries, it falls into place.

Hi thank you for the response, i have been diagnosed with M.E but i wasn't sure if it was a side effect of the M.E. I do tend to get dry brittle hair and its coming away at the roots. And the same as you when i have a bath i really notice it.But my nails are actually quite strong. Im sure i have had my thyroid checked, but i will bring it up with my GP, i havent spoken with him about the hair loss yet. Also i was just wondering do you take any medication for your m.e if you dont mind me asking? Ive just recently started taking amitriptyline and im not sure if its making me worse or better. Its made my memory 10 times worse than what it was & im now constantly in pain everyday, but the pain is more manageable then being ok one day and then the next BAM it hits me and i cant do anything for days.I did explain this to my doctor and he said to up my medication. I dont know if im winning or losing? will it change? is there anything else better out there to try? Sorry to bombard you with questions. Just feeling a little bit lost.

dmadeleine profile image
dmadeleine

Hi! I get lots of hair loss, except mine comes out in big patches very fast. If your hair gets to the point it makes you self-conscious then I would recommend investing in a wig, there are some really good ones and I would be happy to recommend some websites where you can purchase them. I was also given amitriptyline and it gave me the exact same effects as you. I found that it made me better but the effects wore off after a few months. It will change, so don't worry! I now try to take panadol advance instead of prescription painkillers, but when the pain is too bad I do take co-codamol. I wouldn't recommend increasing the medication as it can cause dependency on it. It is good that you are managing the pain, and I hope that you improve soon! Best wishes (and don't worry about the hair, mines come out about 7 times now but it has always come back :) )

RecoveringH profile image
RecoveringH

Hi, I went through the hair loss phase in my journey. Literally handfuls were in the shower but also throughout the house on clothes, noticed in the dyson after vacuuming. In my case it was an indicator of my lymphatic system getting blocked up by a virus. It occurred excessively about 3 months after my acute initial incident of fatigue and continued for two years more or less. I'm pleased to say it has now stopped and I still cast an eye to the drain in the shower and smile at the one or two hairs! I took high doses of vitamin D, Bromelain (found in pineapple - acts as anti-inflammatory) in pill form, magnesium, probiotics with every meal to aid my liver, unashamedly took lots of Ibuprofen for anti-inflammatory properties when the muscle aches became excessive, omega fish oil, high strength multi vit B. My system was driven by these vitamins rather than the food I ate for periods of three months before getting assessed by The Dove Clinic to adjust vitamins as needed. I got to a place where brain fog came and went, enough for me to seek Acyclovir from the doctor for a previous herpes virus disorder which hugely helped me to get to the next level of wellness. I most recently took antibiotics which has elevated me to a space of limited agitation. I am hopeful now with paced exercise of a full recovery. Hope this helps. Dont accept hair loss. I wish I had acted more quickly. See someone. Keep pushing until someone listens and you feel you have been heard.

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