I was diagnosed with ME/CFS 5 years ago after numerous visits to hospitals for rheumatology neurology and God knows what else investigations. I was passed round from pillar to post and was eventually diagnosed by the neurologist as having ME. I had not really heard of it and found it hard to accept because I felt so bad and had such joint pain I assumed it would be arthritis as the cause. I was referred to the Liverpool CFS clinic where I was taught coping techniques and help with accepting the diagnosis. Since then I have worked hard at pacing myself and also reluctantly gave up work. Things definitely have improved.
However the last few weeks I have started to feel really bad again and all the old symptoms have returned. My question is should I go back to the GP and get blood tests or assume it's the ME rearing its horrible head again. My G P was sick of the sight of me before I was diagnosed. I find it hard to accept that the pain is fibromyalgia when the rheumatologist said he didn't think I did have and said it was the start of osteoarthritis as I had just gone into the menopause. All very confusing. Any advice appreciated.