I don't think results are satisfactory, ... - Early CKD Support

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I don't think results are satisfactory, but I'm not the doc.

hazmatrec profile image
6 Replies

hello! I've been wandering around trying to read up on things here, as I've had a few things going on and then a few blood tests have come back off.

last Tuesday, I had a blood pressure spike that left me immobilized and barely able to breath or speak. by the time I got a cuff on and tested, my bp was 179/113 hr 57. my usual is low, kinda 100/70, I have to squeeze muscles to stand up and other fun things. I phoned 111. and spoke to a medical person within about 45 minutes. at that point my bp was non emergency, 136/93 r70. I decided not to go to a&e,I had no pain from it, and no palpitations. the gp the next day requested bloods (liver, urea and electrolytes, and full blood count). the readings are about as they have been. however, my efr has dropped again, to 62, and my creatinine is holding at 91. the urea report is marked as 'satisfactory. no further action. ' and 'patient informed'. no, my appt is tomorrow for follow up, I snuck an early look, I haven't been informed.

to me, a blood pressure spike, plus six months (four tests) of worsening gfr, and six months of out of range creatinine, warrants at least something besides auto filing. I've got a bunch of autoimmune stuff going on, and if my kidneys are getting battered in the process, I would need to lighten the load where I can.

am I thinking wrongly? I admit, I am no doc. but from what I read here and on kidney assoc pages, this is what might be followed up on. any opinions?

thanks for your help! both any now, but and also what I've been learning by reading.

x cath tyler

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hazmatrec
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6 Replies
silverfox81 profile image
silverfox81

I would have my doc run urinary Albumin to creatinine Ratio test. It's the gold standard to see if you have any protein leakage. That is a great starting point. Don't ask, demand it.

silverfox81 profile image
silverfox81

uACR... this is the test you want.

silverfox81 profile image
silverfox81

Educate yourself by reading up on KDIGO, KDOQI, National kidney foundation websites. Tons of info to self educate yourself from reputable sources. These are the experts that set guidelines for kidney issues.

userotc profile image
userotc

Sadly its common that GPs dont advise about kidney disease in the early stages as most on here and elsewhere have found. But Id agree with comments that you should get as many relevant blood and urine tests done then re-post on here for advice, if required. Good luck.

hazmatrec profile image
hazmatrec

thanks for the replies. I'm leaving in about ten minutes. even with not quite enough coffee, cough, I feel ready to start asking questions. x

hazmatrec profile image
hazmatrec

hi all! well. I'll try and be succinct. I guess. the gp told me that my eGFR has been in the sixties for about three years, and my creatinine has been regularly elevated, except for once, in that time, and they wouldn't be urgently concerned unless there was a sudden change. I mentioned that nothing had been done when the filtration and creatinine both went off at the same time three years ago, but that having a blood pressure spike with bradycardia when I usually have a drop with tachycardia is new and off and combined, added to the collective chaos, might be good to get looked into. she said I would first need to get info from rheumy whether this could be related to their work. specialist nurse says bp is not affected by my biologic. but gp also requested I monitor my bp twice daily at regular times and log it and I have another appointment on Tuesday.

this is the procedure for potential hypertension tho, and that is a thing I do not have. so my next question will be, what information was meant to be gained from that data.

mind, I've written this having been lying down all day because of tiredness and stuff. I just gotta find my energy after actually getting to the doc office on Tuesday. I've written it down politely, in case.

kind regards

cath tyler

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