We have set up a support network for patients that are diagnosed with the rare kidney diseases, Fibrillary and Immunotactoid Glomerulonephritis. These conditions are very rare. Present in less than 1% of all kidney biopsies performed.
We have a support page set up on Facebook, Instagram and Twitter. Support website is in development and will be coming soon
If you or anyone you know is affected by the above conditions, please give us a follow. The aim is to make the isolation of rare diagnosis easier and to share vital peer reviewed evidence and information rather than the unknowns and half truths that many of us have had to trawl through on the internet in the search for answers.
You can follow us at:
Facebook - facebook.com/LifewithFGN
Twitter - twitter.com/fgnlife
Instagram - instagram.com/lifewithfgn
Confuse about my gfr with my new dr and old
Worried about my kidneys. 
Am on Tacrolimis causing my hair to coming out in handfuls. Can I get help with wigs on the NHS?
