Blood pressure Medication that ends in PRIL to help kidney disease.

[dizzydi]

I understand that many are prescribed blood pressure medication to help the kidneys such as medication ending with PRIL. Now I have been on the same meds for blood pressure since 2002 called ADIZEM 180MG take one a day and some years down the link they gave me additional ones called Perindopril 2MG.

However, back about 2 years ago they stopped the Perindopril because of raised levels of potassium but that was corrected then through eating the right diet for the kidneys.

Now my concern is, that even though my readings are always better at home than any medical setting, i get worked up easily with anxiety that can get that bp raising again and my Neph is aware of this. Due to some extremely high readings at the renal clinic should they introduce me back to an addition bp med, as stated with (PRIL) on the end, such as Ramipril, it is actually on the nephs computer to give these to me if blood pressure rises but instead they want to push me through a number of tests again, even though they know my diagnosis. And maybe a trial period on extra bp meds will see my function improve as well.

We all know if BP rises it can have an affect on our kidneys and the function.

Really not sure what to think really. Apart from a biopsy which they may be doing again, I have already had the scans etc which diagnosed reflux famililal kidney disease that was back 2013. But i would have thought that the right bp meds to protect the kidneys such as stated above would be given back to me.

Thank you for any info you can offer me x

[bowler]

Have you thought about taking your own readings at home for at least 2 weeks then show these to your Dr. that gives them a guide to how to treat you, I also have the white coat syndrome and my B/P shoots right up in the surgery and in the hospital. I did take Lisinopril which raised my potassium and I was sent to A&E I was taken of those and the potassium went to within normal range, this was about 5 years ago and since then i have been on many B/P meds, to get one that suited me, at the moment I am on Ramipril and so far they seem fine, I did start at 2.5 mgs, but over this past year my Dr. has had to gradually increase the dose to 7.5.mgs to get my B/P at a reasonable level. I have stage 3 CKD eGFR fluctuates around 38 to 44

[dizzydi in reply to bowler]

Hiya and thank you Yes i do that, i always take my home readings in and they are not that bad, but because it goes right up at settings this particular neph i seen last week is not having it and says i need to wear one of those 24 hr monitor thing, so again being told this worked me up, so of course i know it will be up wearing one because its being done for the purpose under the medical setting.

I also have to say as well that my kidney function was stable when i was on perindopril so shame about the potassium, so maybe Ramiprill will help, but as i my function was between the 40 and 50's over a year ago its not dropped to the early 20's, am really gutted because i am following a renal diet, no salt or caffeine, lots and lots of water, but its my anxiety letting me down and ruining my readings.

Sounds like you are doing the right thing my lovely good for you x

[Crinkster in reply to dizzydi]

To be honest, I'd start looking for a new nephrologist. It's obvious this doctor is not taking your particular anxiety problem seriously. Mine takes note of my moods and anxiety level every time I see him. (I have bipolar disorder.) Maybe you need a psychiatric diagnosis before your doctor will take you seriously. If you are documenting your BP every day, or even twice a day, and it's within range, bring it into the doctor's office to make sure your machine is accurate. It probably will be. Then present him/her with your documentation. If the doctor refuses to accept your readings, get outta there.

I had to stop taking Lisinopril because my BP has started to regularly rise to over 14/90 and I was having a scratchy throat/sore throat side effect. I was switched to Losartan. I started at 25 mg but ended up at 50 mg. Now, it's rarely over 130. I am very happy with the change.

Maybe I'm luckier than most. I have several different problems and I am treated in a holistic way by my primary care physician, nephrologist, psychiatrist and pulmonologist. My primary care receives reports from them all and is a kind of "depository" of information. I am treated by my Pdoc every month and the other three every quarter.

[dizzydi in reply to Crinkster]

Thanks again Crinkster I am under a team of Nephrologists and they hold clinics as a satelite clinic at my local hospital and then when I am there I can end up with any of them, sometimes there are only 2 available that turns up like a junior dr and a dr neph but then other times there can be 4 or 5 on duty. I do try to see the professors/nephs but the only choice i had last week was a junior dr who not long came into this and the dr neph, so i seen the dr neph, she was like "Oh my goodness me look at that drop" that made me feel lots worse, then she had the notes of my home readings and the clinic readings that are just done before by the team of nurses before going into see the neph, then said "I suggest you wear a 24 hr monitor and that you must have a biopsy". I explained that I have already been through all this with the professors and if they were concerned of my bp to prescribe another medication and continue with home readings and keep them posted. She knew I suffer white coat and anxiety, so despite having bloods done 2 days before seeing her she sent me out the room to get downstairs to get more done (fair enough on that) and then she sent me out the room with a pile of other paperwork to hand in to nurses to set up appointments and referrals for scans and more etc. My anxiety was through the roof that day. I don't think i will be going to see that one again, if there is another choice at my following appointment i will be seeing another.

Happy to hear that its worked out for you on the medication. I know its trial and error to get it right and I read that is also a good medication :-).

Thank you for your help.........again lol x

[saifomar]

I have been on Lisinopril 10 mg (ACE inhibitor) for the last two years - or ever since my kidneys had a massive malfunction where I had to go to the ER and be on the dialysis machine. My very high untreated BP was the culprit which damaged both my kidneys and left eye sight. I started off with Lisinopril 40mg but that was giving me horrible side-effects and very high potassium level readings on my blood work.

I take the pill every night just before going to bed as the kidneys work with optimal efficiency at night-time while we are lying on our back or are in deep sleep. That is why your urine in the morning has the darkest color (waste).

Lisinopril has been working for me quite well and my kidneys are very stable now

[kithsirid]

so far you have not learned these so called doctors use patient as guinea as pigs to make trials on medicicines ,

we have to pay them for these experiments where as they should pay the patients for using humans in place of guinea pigs , do not worry much ,

try to switch to vegitarian foods , eat a green apple a day , less salts , do not eat red meat and high potasium foods , banana is bad,do not let your mind over come your simple way of life , try to help others as far as u can do it every day ,

my gfr dropped from 51 to 21 after taking medicine from a so called nephrologist , who never speak to patients , HE IS ONLY WORRIED ABOUT HIS DAILY COLLECTION,

i recovered from two heart attacks , i too suffer from so called CKD 3 , u can live with it , give away the money u spend on so called doctors who even do not get a quire meal a day.

medical tets only guide lines for treatments , checking serum creatinine , and protein in urine alone can show where u stand at present.

wish u good health

hope u will write me back

[dizzydi in reply to kithsirid]

Thank you Kithsirid for your helpful feedback and the information you provided. Since knowing of my CKD a few years back I followed that diet plan and still at it but did cheat back at a family party with some nibbles, not a lot but i wont be doing that again.

And your so right in regards of us being used as guinea pigs, it often feels like its not my body anymore and nor that I am in control of it any longer because of all these tests where most I have already had done apart from a biopsy. Which may happen soon depending on the outcome of another ultrasound scan this coming week.

So sorry you lot function because of medicine, that is so scary. Did you manage to get those numbers back up? If so did it take you long?

All labs apart from the eGFR/Creatinine and CRP were out, and urine normal too.

I hope your keeping well. I live in the UK by the way.

Thank you so much and also wishing you the best of luck x