Spasms : Hello, Do any of you have spasms... - Dystonia Society

Dystonia Society

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Spasms

Grapes12 profile image
7 Replies

Hello,

Do any of you have spasms while your are walking and if so how do you manage them? Also do you have difficulty moving your limbs sometimes? I have ataxia on top which complicates things.

Thanks

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Grapes12 profile image
Grapes12
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7 Replies
crazycatlady55 profile image
crazycatlady55

I used to have that problem unit I was prescribed Sinemet Plus. Within a few weeks the spasms stopped. I know Sinemet does not work for everyone but has made an amazing difference to my life.

Grapes12 profile image
Grapes12 in reply to crazycatlady55

Ok great thank you for that. I am going to ask my GP.

Do I ever.. n usually they hurt so bad I start cracking up laughing so I don't cry.Plus I also have a hard time talking because I'm laughing n trying to focus on not falling on my face,lol Gotta love Dystonia !!

Grapes12 profile image
Grapes12 in reply to

It's horrible!!

in reply to Grapes12

It is horrible, but for me medical marijuana REALLY helps my Dystonia.

Tiedye profile image
Tiedye

Hi, grapes I also have ataxia with my dystonia’s sinement was a life saver for me I still have to use a cane and wheelchair for long distances but before the sinement/car dopa I was a flailing, twitchy jerky mess. And medical marijuana is extremely helpful with severe spasms for me anyway. Good luck to ya, hope it helps you. Keep us updated!

AlecB625 profile image
AlecB625

Hi,

My spasms are presently most severe if I walk, even just a step. What kind of dystonia do you have?

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