This is my first post here. I was first diagnosed with cervical dystonia about 8 years ago. Over the years, my symptoms have got worse. My neck now constantly twists to the right, and when I look to the left or straight ahead, I have a pronounced no-no tremor.
Eight weeks ago I had my first Botox injections (150 units of Dysport in the right splenius capitis, 50 in the left splenius capitis and 100 in the right sternomastoid). The pain, for which I'd been having fortnightly physio for the last 8 months, has eased but there's been no change in the muscle spasms in the neck and the accompanying tremors. I've a followup appointment with the same doctor next month.
Has anyone else been underwhelmed by their first Botulinum injections? Was I expecting too much? Was the dosage too low or am I perhaps immune to Botox (I gather it doesn't work for everyone)? Any comments gratefully received!