Hi, I'm new here, I was diagnosed 5yrs ago after 200 blood tests and numerous tablet changes. It'll be nice to chat with people who understand as I don't know anyone else with dopa- responsive Dystonia.
Knowing it's not only me: Hi, I'm new here... - Dystonia Society
Knowing it's not only me
Written by
Dizzy64
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Hello
Are you able to tell us a little more about the symptoms and how the type of Dystonia has been described?
Thank you
Not what you're looking for?
You may also like...
Feeling hopeless. My neurologist has discharged me after 6 years
Hello. I was diagnosed with craniofacial dystonia 6yrs ago. I have been treated by my consultant Dr...
Do anyone get triggered by by other things not just involuntary movements?
I seen a neurologist who thinks I may have dystonia. From what I've read dystonia is triggered from...
I have been referred to the Psychology dept,who have suggested a 6 week course called Better living with illness. Has anyone been on this?
I am not keen on going without knowing what it is all about, I suffer with eye and Jaw spasms and...
Hand dystonia
Hello I’m new on here and live in Ghana. I have been struggling with hand dystonia for about...
Lou's introduction
So glad to find dystonia society on heath unlocked
I've been suffering with dystonia majorly since...
Related Posts
Help 
Recently Diagnosed
Chicken or Egg?
Help with Cervical Dystonia pleaseModeration team
DystoniaUKAdminPartner
