Hi, I'm new here, I was diagnosed 5yrs ago after 200 blood tests and numerous tablet changes. It'll be nice to chat with people who understand as I don't know anyone else with dopa- responsive Dystonia.
Knowing it's not only me: Hi, I'm new here... - Dystonia Society
Knowing it's not only me
Written by
Dizzy64
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Hello
Are you able to tell us a little more about the symptoms and how the type of Dystonia has been described?
Thank you
Not what you're looking for?
You may also like...
Feeling hopeless. My neurologist has discharged me after 6 years
Hello. I was diagnosed with craniofacial dystonia 6yrs ago. I have been treated by my consultant Dr...
Floating in water with cervical Dystonia
Hi I’m new here I have neck dystonia my left shoulder never really relaxes I have Botox injections...
Help with Cervical Dystonia please
Hi, I was recently diagnosed with Cervical Dystonia after being unsuccessfully treated for a head...
Trial for dopamine- responsive Dystonia?
it's my heart...
I would love to chat more on dopa- responsive Dystonia
Last fall I met a wonderful...
Coping with dystonia
there have dystonia in both legs as feeling really frustrated and feel I'm letting people down as I...
Recently diagnosed Dystonia 
Hi! Post-Stroke Dystonia patient here
Life has become unbearable