Hi its Susan, just introducing myself. Mid 60s Diagnosed Dec 2017, with dystonic tremor and dystonia. I keep thinking that the consultant has made a mistake (dare I even say that?) i dont have head tremors . My G.P. thought it was Parkinsons' as my tremors are generalised mainly on my left, but the Neuro Specialist at the consultation was more concerned with my 18 month old frozen shoulder and a muscle in spasm near my neck which appears to make me hold my head awkwardly. Well it's painful ! I've also got a sideways curvature, Scoliosis on my spine which also makes one shoulder lower. So he had me go for a Cervical MRI last week and now waiting for the outcome.
Anybody else confused about their diagnoses? Or advice me please?