Hi,
This is my first post here and it is because of someone I know who is very important to me. Please can anyone tell me what is vegetative vascular dystonia and what is being done to help find a cure or rememdy for this condition?
Vegetative Vascular Dystonia: Hi, This is... - Dystonia Society
Vegetative Vascular Dystonia
Written by
MyPrincess
To view profiles and participate in discussions please or .
1 Reply
•
Hi, when I was first diagnosed with dopa-responsive Dystonia which is one of the rarer aspects of the condition. The best advice I can give you is to do as I did and get in touch with the Dystonia Society, they will help you with advice on your type of Dystonia.
I've had it for nearly 6yrs now, and there is little to no help, most people don't know what it is. I hope this help and good luck.
Not what you're looking for?
You may also like...
Trial for dopamine- responsive Dystonia?
gene? Anyone know of trials?
Lucky me has several things going on. Just like most of us here. But...
Help with Cervical Dystonia please
My question is, what other medications are used to treat Dystonia? What else can I try?
Floating in water with cervical Dystonia
Hi I’m new here I have neck dystonia my left shoulder never really relaxes I have Botox injections...
Respiratory Distress in Dystonia
Found this bit on a website and wondering if anyone else besides me experiences dyspnea and panting?
Dopa-Responsive Dystonia
understand what it's like to have Dystonia and the fatigue that comes with it. As I don't know...
Related Posts
Recently diagnosed Dystonia 
Coping with dystonia 
Hand dystonia
Pregnancy and dystonia.
Hi! Post-Stroke Dystonia patient hereModeration team
DystoniaUKAdminPartner