Vegetative Vascular Dystonia

[MyPrincess]

Hi,

This is my first post here and it is because of someone I know who is very important to me. Please can anyone tell me what is vegetative vascular dystonia and what is being done to help find a cure or rememdy for this condition?

[Dizzy64]

Hi, when I was first diagnosed with dopa-responsive Dystonia which is one of the rarer aspects of the condition. The best advice I can give you is to do as I did and get in touch with the Dystonia Society, they will help you with advice on your type of Dystonia.

I've had it for nearly 6yrs now, and there is little to no help, most people don't know what it is. I hope this help and good luck.