Parathyroidectomy: PTH 1288!

[Sabuj]

Do any body had parathyroidectomy sergery after long time dialysis. 5-10 years.

I an on Dialysis for 10.5 years. My PTH is 1288... I need that sergery.

Will 1,2,3 or 3 1/2 of my parathyroid glands need to be removed. Share your experience so that i can be benifited.

[Shelbert66]

I have been on dialysis for 6-7 years. I have had the parathyroid surgery. Its pretty simple, I hope I can explain it for you. My experience started with a visit to the specialist for thyroid surgery. He felt all around my neck, then shined a light down my throat. Next the actual surgery, only takes about an hour, they take out the parathyroid, but not all of it mine they moved to the other side of my neck. Your Doc & his staff, should explain it much better.Recovery was easy. It can be a one day surgery. I have other complications, so they kept me over night.

I have had no side effects. I take my meds as prescribed & everything seems to be on an even keel for the moment.

Knock on wood.

[CeeBee]

Hello Sabuj

I had a parathyroidectomy after approx 12 years of dialysis and it is a very straightforward procedure. I had it done on a daycase basis but had regular follow up appointments to check on my blood calcium levels. You will need to take Alphacalsodol tablets following this procedure but it isn't a big deal at all. I had this procedure roughly 15 years ago and I've had no problems since.

Best Regards

[Sabuj in reply to CeeBee]

How much your PTH was and does all 4 of the glands are removed?

[KidneyCoach]

I had mine done at 8 years dialysis, 11 years ago. My pth was nearly 4000. My surgeon took his time, about 3 hours. I stayed in hospital for 5 days getting I.V. calcium. I can't recall how many were removed

[I844]

I had 4.5 of my 5 parathyroid glands removed many years ago .. (I have been on haemodialysis for 25 years). The original surgery was reasonably straightforward and recovery quick.After a number of years the PTH results began rising again, and it was supposed that the remaining gland had gone into overdrive.

I was sent for more surgery but that and various MRI scans failed to locate it.

Ultimately I was put on Cinacalcet for a couple of years which brought levels down to normal.

I have had no problems since and would point out I have met no one who had the same problem.. usually the surgery is enough to control it.