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Diabetes & Hypertension Help Society
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Losing my marbles?

Hi everyone, I thought it was time I sought help.

The issue is I have been a Type 1 diabetic for 50 years, and now suffer from neuropathy of the hands and feet, glaucoma, Brittle diabetes and gastroparesis.

A few years ago, (early 2000s), I had an MRI scan which showed lots of brain plaques and I was warned that I might have issues later on in life.

Over the past couple of years, I have had the occasional lapse in memory, which usually resolved on its own. It has suddenly gotten worse.

I woke up one morning, had a shower, went to my underwear drawer, opened it and could not remember what to do with my knickers; I forget words, and describe the objects instead. I sometimes cannot understand what is being said to me, or I speak absolute gibberish. This distresses me because I have (or had) a good brain. In my younger days (I am now 54), I excelled at exams because I scored top marks without having to study. Now I sometimes forget my kid's name, so I call her Baby.

My character is changing, to my utter distress. I appear to have to have no control over my emotions. I used to be a cool, calm, easy going person. I now get into fights with strangers at the vets because they said something unflattering about my dog.

My handwriting has changed, and I can no longer spell. I can no longer concentrate on a task ( you don't want to know how long it took for me to write this piece!) The problem is, during my "senior moments", I feel perfectly fine and believe my actions to be logical. The distress comes later, when I realise what I did.

Question is; what do I do about this? Help!!

7 Replies
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This must be so distressing. I had an MRI many years ago and now have Parkinson’s Disease (as well as Type 2 Diabetes). Because of the plaques, I am at risk Lewy Body Dementia. I get my mini mental state checked at my annual Neurology appointments.

My advice would be to speak to your GP and, if appropriate, ask for a referral to a neurologist. If you are able to get to London, UK you might want to ask for a referral to the National Hospital for Neurology and Neurosurgery.

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I am in Oxfordshire.

Going to London, I'll have to ask my girl to drive me as I lost my driving license last year because I have lost all hypo warning signs/hypo awareness. I will ask my GP if I could be referred to the NHNN.

Thanks for your helpful advice.

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Not a problem. I travel down by train from Lincolnshire. I was diagnosed there and, 10 years later, I have just gone onto annual reviews.

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Start by seeing your GP.

Keep to 40g, low Gi carbohydrate each meal, and lower your insulin to match. Get most of your energy from natural, monounsaturated fats like olives or nuts.

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Thanks for your input.

The problem with low-carbing is it does not sit well with gastroparesis.

I will give it a go and see how I get on.

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Is this low carb? You can get a load of (particularly non-starchy) vegetables for 120g low Gi carbohydrate per day.

If it's fibre you need, coconut and many nuts provide fibre for few carbs.

All the best!

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As a result of gastroparesis, my stomach cannot handle fibre.

I have to have soft, near liquid food (ughhh!) when it's particularly bad.

I do love my veg, though, so I think I will increase the veg and cut down on the carbs.

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