free from the plague of meds ....

[shasha]

JUST WANTED TO SAY TO ALL OF YOU THAT I AM NOT MORE ILL THAN I WAS BEFORE THE' HOLIDAY' - IT JUST HAS A DIFFERENT NAME - WHATEVER IT IS IT WILL PROGRESS AS IT WAS GOING TO ANYWAY - AND FRED AND I REJOICE IN THE FACT THAT WE ARE FREE OF ALL THE PILL ROUTINE EVERY 4 HOURS 5 X A DAY

IN A FUNNY WAY THERE IS REAL SENSE OF FREEDOM ABOUT IT !!

LOVE AND GOD BLESS TO YOU ALL

SHASHA XXXXX

[Court]

Dear Sha

I was really pleased to read your note and to see that you are still your usual positive self. You are quite right at least you know what you are dealing with, and when push comes to shove, what's in a name, you are still you. Just live your life to the full. You are not a person with psp, or whatever, you are still our friend, Sha. and always will be.

Thinking of you and your Fred.

Suexx

[shasha in reply to Court]

dear sue

thanks for your support and kind words

sha xx

[parkie-Al]

Hi Sha,

i agree with Sue, we love you no matter what

Al

XXX

[shasha in reply to parkie-Al]

thanks big al - we all love you too

i shall be either going to a rehab unit for physio or going home on monday

bet you know which one i prefer !!!

[parkie-Al in reply to shasha]

Home and to the nearest pub

take care

Love

Al

[shasha in reply to parkie-Al]

they dont have pubs here only bars

which are not the same at all

[parkie-Al in reply to shasha]

Hi SHA,

Is that not a fancy name for a pub,

Al

xx

[shasha in reply to parkie-Al]

no as they are mostly not very fancy !!

[honeycombe3]

Good morning Sharon,

Great minds think alike. Well done & keep up the good work (& attitude).

Love,

Angela

[shasha in reply to honeycombe3]

dera angie - once again i thank you for just being you

love sha xxx

[tmhiggs]

so if you do not mind me asking they don't know when you have? I'm going thru the same thing as you right now.. I am seeing a new doctor and he doesn't think I have Parkinson's disease but another form of PSP. he wants me to have additional testing. still taking my meds as of now.

[shasha in reply to tmhiggs]

if you want to message me i can go into more detail my email is [e-mail]

[tmhiggs in reply to shasha]

ok will do

[shasha in reply to tmhiggs]

sorry imbiggs but i dont understand you question

[tmhiggs in reply to tmhiggs]

sorry I use the wrong initials. the doctor thinks I have another form of Parkinson plus syndrome, which is called multiple system atrophy (MSA)

[shasha in reply to tmhiggs]

well i dont know a lot about msa but psp i am beginning to know very wel!!

[tmhiggs in reply to shasha]

msa has a poor prognosis... just sent you an email

[tmhiggs in reply to tmhiggs]

good luck to ya shasha!

[shasha in reply to tmhiggs]

AND ALL THE BEST TO YOU TOO X

[shasha in reply to tmhiggs]

ABOUT THE SANE AS PSP I THINK

[shasha in reply to shasha]

SAME THAT IS

[PatV]

Glad you are med free with all the stupid side effects. I never give up hope!

[shasha in reply to PatV]

IF ONLY THEY HAD ANY EFFECTS AT ALL !! BUT AT LEAST I SHALL BE ABLE TO ENJOY A GLASS OR TWO WHEN I GET HOME

LOVE SHA XX

[tlongmire in reply to shasha]

Yay! That's a good thing. Enjoy. I plan to enjoy a glass this afternoon when my brother and sister visit. I'm looking so forward to it. Take care and hang in there as I know you will.

Hugs, Terri

[hilarypeta]

Well done! I have still never started and feel better with exercise, relaxation and vitamin supplements. Just keep healthy eating, laughing, and having fun! I still believe meds make you worse . Trying howard lfkes qigong exercises for now. Keep your liver healthy ..digestive system and our bodies get the nutients to use to sort out any imbalances in Your Health.

.

[shasha in reply to hilarypeta]

dear hilary

please could you let me know the supplements you take - i already take codliver oil 2000 grms and rose hip vit c and glucosamine 2000 grams a day

[Annie81963]

Hello Shasha,

You remind me of my friend Betty,great lady.

I wish you the best and thank you for sharing.

Hugs and more hugs are sent you way

[hilarypeta]

Im sorry tried to get back to you but,the site didnt respond to my signing in! I think supplements best discussed with nutritionist..but i take 1000 gm vit c everyday, 100 co enzyme q10 mutivi vit fand homocysteine formula, from higher nature, krill oil omega 3 , zinc sulphate to detox. Then not everyday I take magnesium for stress snd sleep andcamomile teas! And for high cholesterol...mexican red yeast rice pill. I take prunes and dried apricots every day and do qi gong liver cleanse exercise and drink lots of water...to make certain it digests ok and stops constipation.

Hope that helps! Im learning by trial and error..have bach flower mix drops to support..Digestion is the key in my opinion, lots of green veggies..if feel dopamine low..broad bens and avocado!

[shasha in reply to hilarypeta]

thanks for the input - what do you think about creatine ?

[liljulez]

Hi Sasha ..am i reading correctly ...you dont take meds ..i have been told by lots of people including my specialist i dont look like ive had pd for over 23 yrs as it has progressed very slowly...id love to get off meds as im sure they have added to the problem! ive been tested and apparently i do have it but its kinda confused the dr! He said im mvery lucky....id feel even luckier off the meds! I take less meds than prescribed which i see as a way on the ro-a-d to living without meds but im a little scared to reduce more without learning more..any advice would be greatly appreciated!

[shasha in reply to liljulez]

hello - so sorry not to have seen this question sooner - but i now have been dx with PSP hence the no drugs - anyway you are truly a miracle - 23years !!!

what can i say

all the best

shasha