I have alot of pain and numbness from my toes curling. Is this normal?

[lmacquinn]

[Hidden]

The thing I have found with PD is the quirky and unexpected, so what is 'normal' becomes a bit tricky to answer! I guess I look at it as what is symptomatic of PD rather than it being something else like flu. But here I can offer some insight, toe curling was my first symptom and my big toe is practically all numb. Yes it was painful when I had shoes on, and some I couldn't keep on at all. I am pleased to say that numbness is the only thing that remains since I have been on Levadopa. So for now, at least I have some respite. Funnily I found those wacky socks with 'toes' helped. KIndest C

[lmacquinn in reply to Hidden]

I figured it was common but wasn't sure if the numbness was from Parkinsons or diabetes. Either way it's not nice.

[carolineb211]

Yep, me too. I have one toe that is determined to hide beneath the one next to it, makes it tricky to walk at times, especially in sandalls!

[lmacquinn in reply to carolineb211]

definately painful to walk

[olpilot]

I had that with pretty bad cramping in my legs, dr called it dystonia, fairly common in PD. He prescribed amantadine and it started to work in a couple days, now rarely have much pain or curling.

[lmacquinn in reply to olpilot]

I'll ask my DR about that med. thanks

[BILLYRAY]

just myy right foot will curl up...not much pain oher than the pain of falling

[Hidden]

Two small toes left leg. that is where it affects me.

[HomeinVa]

My toe curling was the symptom that got me to a neurologist. I also have what one neuro referred to as hitvhhiker toe (big toe points up). Meds have not worked, surgery was a bust and caused more problems, so now I get botox injections every three months. A little pain when the shots go in, but it causes those muscles to relax within 10 days..Good luck to you. I hope you find something that works for you.

[tlongmire in reply to HomeinVa]

My big toe points up and the others go down causing pain in the arch and up the back of my calf. Where did they inject the botox--big toe?

[HomeinVa in reply to tlongmire]

I get several injections. Two too the back of the calf and three in the bottom of the foot. It is called EMG, I don't know what that means but it uses a machine to let the doc know he is hitting the right muscle group. They also prescribed me a lidocaine lotion to apply to help with the sting of the injections. Hope this helps. Good luck.

[PatV]

my latest symptom is toe curling (clutching really) on my right (non-affected ) foot. makes it scary to get around and make coffee, etc. do not want to trip and fall! I have to put on rigid shoes until meds kick in , which I hate. I am always barefoot indoors. normal? what's normal for pwp's???

[harding55]

My toes curl on my left foot. The joint on my 2nd & 3rd toe looks deformed now. It is usually more comfortable when I wear shoes or slippers. I had 2 fractures in my left foot in April and the dr didn't realize it til May. He thought it was gout. I think it's time for a new doctor.

[honeycombe3]

Is this normal? It is for me. (8 yrs dx, no comfort).

[Iron1]

Definitely- for me the toe numbing and foot cramping usually indicates that I will have to rest or cope. IF I had a front row ticket on Broadway I would definirtely put up with this symptom and massage feet toes ankles, and wear supportive shoes.

As far as diagnosis - I wouldn't stay with the doctor who thought you had gout. I have in switched docs myself, and have found that second opinions can make a big difference

Iron

[moonswife]

I have it too, but then so did my mother, father and sister and they did not have PD. I must have been the least lucky: bunions, toes curl and overlap, are numb and cold a lot. Hereditary bad fee, for sure. PD complications on top, probably. Had custom shoes made. Maybe they are helping, but I am not sure.

[shasha]

yes my lft foot is being a b----r at the moment - stopping me walking --

[honeycombe3]

Sharon, my friend nothing can keep you down. You are an inspiration to us all. Let me know if you canget to UK i'm looking forward to meeting you,

Angela