today I had good session with my consultant, things haven't decreased too much, not much change in 12 months. He asked if I had heard about this, I explained I signed up yesterday, I'm pleased to know he also will be involved, I think this a very positive & exciting step forward.....
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It is your right,especially as we are from all over the country,weve been asked and our neuros are involved. As I said it a few hours with a neuro,longest most of us have spent under there noses,and they do all seem fired up about this study.Its a fantasticopportunity for us to do something positive and perhaps will be a way forward to future engagement
I think it is the best thing...you would have thought someone would have thought of this sooner??? Set up a world wide data base so when they diagnosed someone with PD they could have them fill out a survey.....
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